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My sister has a brain tumor!!!!! - Page 7

post #181 of 207
love and prays to your sister, you and your family.
post #182 of 207
Sending you best wishes for a speedy recovery time for your sister. You and your family will be in my prayers. Hurray for the successful surgery!

Tricia
post #183 of 207
Thread Starter 
I'd like to ask you all a question. What would any of you suggest for Dorothy, my sister, to wear over her skull to cover her surgery site, that's filled with stiches, blood, brusing, for when she goes out of the house?

She's been wearing a hat but when she goes to a place to eat, it's typical to normally take your hat off so she feels awkward. Plus the warm weather is coming so it would really look odd for her to be wearing a hat.

We've tried a scarf of many materials and it sticks to her stiches. I've given her a head band but it feels uncomfortable leaning right on the scarred surgery site.

Any suggestions would be helpful! Thanks either way.
post #184 of 207
Here, many Moslem women wear headscarves of the lightest silk in summer, and tie them like turbans round their heads, as well as wearing them in the traditional way. They look really attractive. Maybe if your sister had a medical skullcap underneath, then a brightly coloured silk scark, she would look like she was setting a new fashion?
post #185 of 207
I am praying for her and for your entire family.
post #186 of 207
I like the turban idea! I don't know if they are still sold, those soft cotton turbans that used to be available, for when you are putting on your make-up. Maybe something like that would suit, as they were quite lightweight, and not too elasticated, so they wouldn't press so much on the sore places.

A friend of mine had leukemia, and chemo made her hair fall out. She was on a ward with some other ladies who were in the same situation, so they had a crazy hat competition: who could wear the most fake flowers pinned to their hat, or the loudest colours, and other stuff like that. I tell you, some of the creations were so fantastic I wished I had one like it!

Am also praying for you and your family.

Sue
post #187 of 207
Sending good vibes to your sister.
post #188 of 207
Thread Starter 
These all sound like interesting ideas. I'll have to run them by her and see what she thinks. In the meantime, keep your ideas coming, they are very helpful. Thanks.
post #189 of 207
Hi Cheryl - I don't know whether this will help. A quick google revealed loads of links but this seems to be a specialist one in the US http://www.headcovers.com/
It might give you some ideas for what she can do.

I hope everything is going ok for you and your sister.
post #190 of 207
Thread Starter 
Quote:
Originally Posted by flisssweetpea
Hi Cheryl - I don't know whether this will help. A quick google revealed loads of links but this seems to be a specialist one in the US http://www.headcovers.com/
It might give you some ideas for what she can do.

I hope everything is going ok for you and your sister.
Beth,

What a perfect site!!!! I love it! It's so helpful. I added it to my favorites! Thank you so much. This is so good, she's going to love looking through this. I really can't thank you enough. I didn't even think to google the idea. Too much on my mind, I think!. Thank you again.
post #191 of 207
Anytime sweetie.
post #192 of 207
I had one other thought - there are little white cotton caps, crocheted and very pretty, that men wear here to go to Mosque. But I have often thought how good they would look on a woman. They are light, easily washable, and let the skin breathe. If you like the idea and send me a PM with your address, I will send you one.
post #193 of 207
Thread Starter 
Quote:
Originally Posted by jennyranson
I had one other thought - there are little white cotton caps, crocheted and very pretty, that men wear here to go to Mosque. But I have often thought how good they would look on a woman. They are light, easily washable, and let the skin breathe. If you like the idea and send me a PM with your address, I will send you one.
You are too kind. Let me run this idea by her and see if she would be interested. I will then PM you my address. Thank you so so so much. You are very thoughtful.
post #194 of 207
Thread Starter 
Quote:
Originally Posted by flisssweetpea
Hi Cheryl - I don't know whether this will help. A quick google revealed loads of links but this seems to be a specialist one in the US http://www.headcovers.com/
It might give you some ideas for what she can do.

I hope everything is going ok for you and your sister.
Beth,

I wanted to let you know my sister looked this site over and she called and told me, although it's great, she's adjusted herself for now to wear headbands. So I guess she's coming along faster than I thought, for now.

Thanks again!
post #195 of 207
I am so sorry to hear about your sister. My family and I will pray for you and your Sister and that she will make a full recovery. Please keep us posted on how your sister and you are doing.
post #196 of 207
Quote:
Originally Posted by ccoccocats
Beth,

I wanted to let you know my sister looked this site over and she called and told me, although it's great, she's adjusted herself for now to wear headbands. So I guess she's coming along faster than I thought, for now.

Thanks again!
That's great to hear Cheryl - every little step along the way is good to hear about. They all add up in the end.

Lots of positive vibes still coming your way to help you and your sister through this
post #197 of 207
Thread Starter 
UPDATE - Thursday - 5/5/05

Last Update was on Page - 15, #170

Spots on chest were old inflammatory scars. Thank God. Dorothy has since seen her eye surgeon who did not want radiation to start till she saw an Oncologist since they "thought" the tumor in her brain was benign, when in fact it was Lymphoma, but benign.

This opens up all new areas now. She saw her Oncologist who determined she should have radiation done to her eye area for 4 weeks, or 20 treatments.

She had her radiation consultation yesterday and was told: "Didn't anyone else tell you? You will be needing radiation partially or fully to your brain!" Since the last film taken showed over her eye stains that now make her tumor cells behind her left eye cancerous. BUT she said it could be the steroids masking something. Meaning it could be showing cells that are in fact not there. Or we could be seeing nothing and there could be MORE! But she said, "Not to worry, cause whatever we find, it IS curable". She didnt say more couldn't grow back. But I guess that's where her being tested every 6 months through MRI's and Catskans, come in.

So now she got in touch with her other doctors to all come to a decision on partial or full brain radiation. With this she will in fact go completely bald; be very fatigued; have burnt skin on her head and over her left eye area, and her cognitive thinking will be off. This is all very very over whelming to her (and me alot, more than I can express) not knowing for sure, still, what she may now have to face! She's set to get a second opinion and also hear the final decision from the first radiation specialist by next week. She has looked into buying a wig.

I told her you have to get this done to kill any cells that are there, your hair will grow back, and you can use a wig in the interim, and your cognitive thinking will come back as well. All this is temporary, and you went through the worst part with the brainsurgery itself.

BTW: From the brain surgery her hair has fallen out alot and thinned out alot. Her scar is healing nicely though.
post #198 of 207
my prayers with her and yourself
post #199 of 207
Cheryl, this is just awful. But, the docs are saying this is treatable. That means she has an awful time with radiation and surgery, but afterward she has a good quality of life and goes on. While this is very very difficult, it will get better.

As you know, my Mom died 3 years ago of a VERY DIFFERENT brain tumor. But she did go through the hair loss through her treatments. She purchased a very expensive, human hair wig, which she hardly ever wore. It was just too uncomfortable. And the big, turban type head covers made her too sweaty.

Your sister's choice of headbands is a great option. Mom also had a few light hats, almost like turbans but made of light scarf material.

I am very sorry your sister and your family are struggling with this. Hugs and purrs to you all. In five years your perspective will be very different, and you will look back on these difficult days and reminisce. For now, just remember what my cousin told me-she heard that tears are supposed to wash your soul. (Followed by telling me that her soul must be very clean!) Go ahead, let the tears flow, but there IS sunshine in the days ahead.
post #200 of 207
Thoughts and good vibes continuing to come your way for your sister and hte whole family who are going through this.
post #201 of 207
I am sending prayers for your sister, you and your family.
post #202 of 207
Cheryl, I am VERY VERY glad that the doctors are confident in the "treatability" of this. You were right in saying that the hardest part-the brain surgery- is over. But, radiation is no walk in the park and for that reason my thoughts and prayers continue to be with you, your sister, and your family. Please keep us updated on her condition.
Is there a Locks of Love organization in your area that may be able to donate a realistic wig to your sister?
post #203 of 207
Oh Cheryl - I can understand why you feel so overwhelmed. But the things you told your sister are right. She has gone through the hardest part. Although the treatment won't be easy, she will be progressing step by step to recovery with each treatment. Each radiotherapy session completed will be another step along the road.

I'm thinking of you all and hoping that the treatment progresses swiftly and as comfortably as possible under the circumstances
post #204 of 207
Thread Starter 
Quote:
Originally Posted by ugaimes
Cheryl, I am VERY VERY glad that the doctors are confident in the "treatability" of this. You were right in saying that the hardest part-the brain surgery- is over. But, radiation is no walk in the park and for that reason my thoughts and prayers continue to be with you, your sister, and your family. Please keep us updated on her condition.
Is there a Locks of Love organization in your area that may be able to donate a realistic wig to your sister?
I don't know, I never heard of it. I guess I'll have to check into it somehow, but how I don't know. Thank you so very much for that idea though.
post #205 of 207
Thread Starter 
Quote:
Originally Posted by Beckiboo
Cheryl, this is just awful. But, the docs are saying this is treatable. That means she has an awful time with radiation and surgery, but afterward she has a good quality of life and goes on. While this is very very difficult, it will get better.

As you know, my Mom died 3 years ago of a VERY DIFFERENT brain tumor. But she did go through the hair loss through her treatments. She purchased a very expensive, human hair wig, which she hardly ever wore. It was just too uncomfortable. And the big, turban type head covers made her too sweaty.

Your sister's choice of headbands is a great option. Mom also had a few light hats, almost like turbans but made of light scarf material.

I am very sorry your sister and your family are struggling with this. Hugs and purrs to you all. In five years your perspective will be very different, and you will look back on these difficult days and reminisce. For now, just remember what my cousin told me-she heard that tears are supposed to wash your soul. (Followed by telling me that her soul must be very clean!) Go ahead, let the tears flow, but there IS sunshine in the days ahead.
When you say the wigs are uncomfortable, do you know, how do they stay on your head, with elastic? Glue? How?
post #206 of 207
Oh Cheryl, thoughts are coming yours, your sisters and your families way.
post #207 of 207
Hang in there! Prayers coming your way!
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