I will pray for you all, and especially for Seth. I have cystic fibrosis, so I have a small amount of knowledge of how scary stuff like that can be (but it's always easier when it's you, rather than your child; I know
). Hang in there, and let us know how it's going when you get a chance...
Seth is in a room with another little boy now.They had to clear out the one side of the Peds floor because of asbestosis.
anyways,Seth stoppede breathing and broke out in a rash.Good news, was the rash is only from the sheets.
Bad news, the x-rays show that he is getting worse instead of better.He is now going to be started on Vanakamicin (sp) which they say is the BIG GUN.I'm am as scared as I have ever been in my life right now.
We had the private room for about 15-20 mintues and now we have another roomie.He isn't as sick as Seth and I fear for him now also.
The Dr told me that we will have Seth take this antibiotic for a day and then go from there as to what we will do.There is still the high chance that a chest tube will be done.Right now, he has a mild Pluralinfusion or something like that.But, it can change and if so, then they will do the chest tube.
I can not thank you all enough.My family thinks I am crazy for thinking of you all as my family,but you all are.
HUGS!!!! They told me that I can keep this in the room with me as long as it doesn't get in their way.So, I can and will post as often as I can.
Oh no! I'm so sorry to hear that. He's in good hands now and they will make him better in no time!
All the
and vibes to calm your fears, and help your little one heal I am sending to you from me and my clan here in Iowa. You are in our thoughts.
Please keep us updated as much as you can.
Still keeping you and Seth in my thoughts. In case you're interested (you mentioned doing research), it's spelled pleural effusion. It means a build up of fluid in the pleural space, around the lung. I know that sounds scary, but it's treatable and he could possibly recover from it on his own. I hope it stays mild and gets better, but if they do need to do a chest tube it will at least remove the fluid and hopefully make breathing easier. Keep in mind that, while all these procedures, drugs and IVs are scary, they will help Seth's body kick that pneumonia's butt. Try not to get too into the medical side of it........a lot of online resources list worse case scenarios and can be very overwhelming if you're not familiar with the terminology. I really recommend that you not search online too much lest you make yourself more worried. Let the doctors worry about all the medical mumbo jumbo. You just focus on your boy. I know Seth can come back stronger than ever.
I hope he feels better soon. pnemonia is a real pain, i am sure after a couple of days there he will be a alot better. just remember it can take a long time to fully get over it.
I went through something similar myself a few years ago. It was very scarey for me as an adult. I can only imagine what it's like for a small child.
He is in the best place he can be right now and sounds like he's getting all of the appropriate treatment.
If you feel like you don't understand something, don't feel bad asking the nurse or doctor to explain it to you in plain English so that you understand what they are doing and why. Knowing these types of things will help alleviate some of your fears.
Also, make sure you take care of yourself so that you can take care of him. The last thing you need to do is burn yourself out. Make sure you get away from the bedside and take some breaks for yourself and clear your head.
Thank you everyone.Seth's temp is 102.8 right now.They just gave him another breathing treatment,so I thought I'd hop on here for a sec and update eveyone.
As for the looking things up,I just couldn't bring myself to do that.I remember what I when Sis found that lump.And I can't handle reading anything that will scare me more than I already am.
I asked the Dr. why if Seth is getting so much sicker,they put another little one in here with us.They are so packed with kids with RSV and pnemonia.But, as soon as one comes open,Seth will be moved BACK into one....or into isolation.
HUGS everyone.