About two weeks ago, my niece gave birth to two baby girls (fraternal twins). One twin is healthy; however, the other girl has a congenital heart defect called tetralogy of fallot. She has had a number of tests, and unfortunately it's not the commonly known kind that can be fixed with surgery at an early age and then just monitored. In fact, it seems the doctors are not familiar with her particular condition at all. They have assembled a team of doctors to discuss scenarios and are going to do surgery on her soon. They also don't know exactly how many problems there are until they can get in and see for themselves what is going on. Hopefully, they can fix what is wrong and she will be okay, but she would eventually have to have additional surgery because the stent or whatever they use to repair would not grow with her and would have to be replaced.F ortunately, they have one of the best surgeons on the east coast for this type of surgery. My niece and her husband are coping as best they can, and the grandparents and friends are helping. We live in another state and the only thing we can do for them right now is pray.
http://www.mayoclinic.com/health/tetralogy-of-fallot/DS00615
http://www.mayoclinic.com/health/tetralogy-of-fallot/DS00615