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Lee, because we get "googled" for biz reasons and a while back someone on a stock board turned up one of my threads here, I want to put this out there publicly (though I will PM you to compare notes). The reference to having tried just about everything, legal or illegal, is not in reference to pain meds.
It was when his 7th neuro was "out of bullets" that he referred him to pain management, and he has a fabulous PM Doctor. Gary is on the cadillac of pain meds, dilaudid - somewhere between 5 - 8x stronger than morphine. ...Though interesting you mention it, he was prescribed tincture of opium for his GI issues back in 2005/2006. His PM Doc runs several surgery centers, and he did the electronic stimulator implants:
No, I was referring specifically to psilocybin/LSD which has been shown to be very effective in the "treatment" of cluster headaches: http://www.ncbi.nlm.nih.gov/pubmed/16801660
I know psilocybin mushrooms ("magic mushrooms") were legal in Amsterdam - I'm not sure that's still the case. Either way, it's moot, because Gary can't fly. They don't pressurize the cabins enough.
However, the sale of psilocybin spores is legal in the U.S. if used for research. So traveling to Amsterdam isn't necessary, mushrooms are actually quite easy to grow.
They are the ONLY thing that has provided him any measure of relief. But they stopped working - or we'd still be growing them, because the doses required are sub-hallucinogenic. ...not that you want to take them just before a business meeting, but the relief provided lasts for days and weeks - some for months.
Sadly, clusters don't usually even respond to narcotics, and if they do, for many they cause rebound attacks. But he's detoxed numerous times and we have kept (as you can see above) an extremely detailed "headache" journal. It's apparent the narcotics actually do help his pain and do not cause rebounds, so Gary is also pretty unusual in that way - and I am VERY thankful that he's got at least that.
It was when his 7th neuro was "out of bullets" that he referred him to pain management, and he has a fabulous PM Doctor. Gary is on the cadillac of pain meds, dilaudid - somewhere between 5 - 8x stronger than morphine. ...Though interesting you mention it, he was prescribed tincture of opium for his GI issues back in 2005/2006. His PM Doc runs several surgery centers, and he did the electronic stimulator implants:
No, I was referring specifically to psilocybin/LSD which has been shown to be very effective in the "treatment" of cluster headaches: http://www.ncbi.nlm.nih.gov/pubmed/16801660
I know psilocybin mushrooms ("magic mushrooms") were legal in Amsterdam - I'm not sure that's still the case. Either way, it's moot, because Gary can't fly. They don't pressurize the cabins enough.
However, the sale of psilocybin spores is legal in the U.S. if used for research. So traveling to Amsterdam isn't necessary, mushrooms are actually quite easy to grow.
They are the ONLY thing that has provided him any measure of relief. But they stopped working - or we'd still be growing them, because the doses required are sub-hallucinogenic. ...not that you want to take them just before a business meeting, but the relief provided lasts for days and weeks - some for months.
Sadly, clusters don't usually even respond to narcotics, and if they do, for many they cause rebound attacks. But he's detoxed numerous times and we have kept (as you can see above) an extremely detailed "headache" journal. It's apparent the narcotics actually do help his pain and do not cause rebounds, so Gary is also pretty unusual in that way - and I am VERY thankful that he's got at least that.