A friend's little boy has just been "maybe" diagnosed with it. They thought he had asthma for a while, then thought he had some sort of foreign body in his lung, so did exploratory surgery last week, and found nothing, except that he might have this condition which is causing the problems.
He only just turned one a couple of weeks ago, and they spent 6 days in hospital last week with him, and have now gone to Melbourne (they're in Australia) to see more specialists in the hope the docs there will know more than at the hospital they were at last week in Canberra (which doesn't have as many good specialists).
I Googled for it and the first thing I found was this:
I'm struggling to find a lot of good info, and it's hard to talk with my friend since they're constantly seeing specialists, and they're staying with her parents, so if anyone knows anything about it so I can better understand what this problem is, that'd be great.
He only just turned one a couple of weeks ago, and they spent 6 days in hospital last week with him, and have now gone to Melbourne (they're in Australia) to see more specialists in the hope the docs there will know more than at the hospital they were at last week in Canberra (which doesn't have as many good specialists).
I Googled for it and the first thing I found was this:
It sounds as though it's rare to start with, and normally diagnosed at birth, rather than in 1 year olds. The article also says:Congenital lobar emphysema (CLE) is a potentially reversible though possibly life-threatening cause of respiratory distress in the neonate.
He is able to feed, and he is growing, but he's definitely in some sort of "respiratory distress" because they thought he had asthma.Infants with CLE who are not clinically in respiratory distress and who are able to feed and grow do not necessarily need surgery.
I'm struggling to find a lot of good info, and it's hard to talk with my friend since they're constantly seeing specialists, and they're staying with her parents, so if anyone knows anything about it so I can better understand what this problem is, that'd be great.