Hello everybody,
This is my beautiful and gorgeous Princess-Queen, IsaBella, who was born with Tetralogy of Fallot, Radial Hypoplasia and Pectus Escavatum. Her Cardiologist, after doing an echocardiogram, gave her only 1 year to live, and no more than 1.5 years maximum to live. She's been with me now for 6 years and doing really well, other than the exercise intolerance which makes it very difficult for her to breathe, but she loves to play. She will play hard for about 10 seconds and then lay on her side to do her recover breathing. I sing her a certain song each time that she seems to like because she wags her tail a little bit when I do, even though my voice sucks, lol. She was found alone in a field, either abandoned by her mom or thrown out there becuase of her multiple conditions, unable to defend herself which just breaks my heart thinking about. She takes compounded Sildenafil twice a day for the Tetralogy of Fallot.
I'm hoping there are others here here that will share their experiences with their beloved babies with Tetralogy of Fallot ("TOF"). IsaBella is my dream daughter and I love her to the ends of the Earth.
The picture isn't the best because it's a phone photo with a lot of sun coming in behind her, but it best shows her other conditions.
This is my beautiful and gorgeous Princess-Queen, IsaBella, who was born with Tetralogy of Fallot, Radial Hypoplasia and Pectus Escavatum. Her Cardiologist, after doing an echocardiogram, gave her only 1 year to live, and no more than 1.5 years maximum to live. She's been with me now for 6 years and doing really well, other than the exercise intolerance which makes it very difficult for her to breathe, but she loves to play. She will play hard for about 10 seconds and then lay on her side to do her recover breathing. I sing her a certain song each time that she seems to like because she wags her tail a little bit when I do, even though my voice sucks, lol. She was found alone in a field, either abandoned by her mom or thrown out there becuase of her multiple conditions, unable to defend herself which just breaks my heart thinking about. She takes compounded Sildenafil twice a day for the Tetralogy of Fallot.
I'm hoping there are others here here that will share their experiences with their beloved babies with Tetralogy of Fallot ("TOF"). IsaBella is my dream daughter and I love her to the ends of the Earth.
The picture isn't the best because it's a phone photo with a lot of sun coming in behind her, but it best shows her other conditions.
