I am sorry

I am sorry that I havent been keeping up on the site, i was undergoing surgery and then something even worse had happeded, my mom just passed away a month ago, and i am only 15 by a couple of months, but from now on i will try to keep up on this site.

Well, you know, a lot of us leave here from time to time for certain reasons - and you sound like you've definitely been having a very hard time lately.

I hope all goes better for you and that things are a bit happier in your life.

I am sorry to hear about your Mum, that must be very hard.

i am so sorry for your loss and hopefully everything went well in the surgery.

I' really sorry to hear of your loss and hope everything gets better for you, sounds like you've had a terrible time honey. Sending a big hug to you.

I am sorry to hear of your loss

Take care and thanks for dropping by

I'm very sorry for your loss and that things in your life have been so rough. If you ever need to vent we are here to listen

its just that we both have a disease called FAP, you can find out more by going to this website, http://ghr.nlm.nih.gov/condition=fam...atouspolyposis and my papa (moms dad) had it and they did a gene test to me and i had it so they had to to a colonoscopy, looking at my colon, and they had to take it out, and i had to have a 2nd surgery recently, around the end of august, and my moms turned to cancer already before we knew she had it and she went to chemo, radiation EVERYTHING and we had to put her in a nursing home (she was only 37, she would of turned 38 in may) she hadnt walked for a LOOOONG time, and she was getting physical therapy in there, until she just couldnt, and we put her on this intervenous feeding (into the vein) because of a blockage (since the colon isnt there to help digest the food more, it could build up and cause a blockage), she wanted to try the feeding, so we did, and it was helping the biggest tumor grow FAST, she had 11 in all, in her lower body, then since she wasnt able to get her chemo it spread to her left lung, and fluid was building up so she couldnt drink anything else for a while. then it stopped i guess, and we kept her comfortable with morphine, she was up to 170mg per hour, i was there when she passed, and it was peaceful, i think. and im happy she is not in pain anymore

I'm so sorry to hear of all the suffering you have been through. You and your mom are so young, it's terrible that you have had to go through so much so early in your life. Please come talk to us anytime you need to!

Thank you for just listening to everything i said. really,thanks

oh, and i thought i should mention this, when we took her off the feeding they said 48-72 HOURS (on the 3rd of october they said that) then the following monday (the 10th) they said 24 HOURS, she madce it FOUR WEEKS AND FIVE DAYS w/o food, only some little stuff to drink, and in the week before she passed she made a motion to drink (she was a little out of it, i mean because of the morphine) and i gave her some water (you had to tip the glass and hold it) and i asked if she wanted anymore and she said no, she wouldnt say what exactly and then she says i want regular pop, she used to LOVE pepsi, so i said do u want pepsi? and she told me yes, and she had a drink of it...for the last time...

Ali,

My heart goes out to you. You sound so strong and mature for you age. Just remember you are still a kid and can just "let it all go" sometimes and just breakdown and have a good cry I was there when my grandmother passed away and you are right it is very calming to be there at the end. I was smiling and crying all at the same time. I KNEW she went to a better place when I saw her raise her arms to the ceiling.

If you ever need someone to talk to, just PM me.



Bobbie

So sorry for your loss. Don't be sorry for not being here. This site is not your first priority, especially with what your going through, but just know that we are all here for you if you need people to talk to.

Originally Posted by KitEKats4Eva!

I am sorry to hear about your Mum, that must be very hard.

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.....don´t problem! ...Is great to see you here!

I'm so sorry to hear about what a rough time you've had. I'm a medical student, and I actually recently learned a lot about FAP in my GI course, so I know what kind of a disease it is and how rough it can be on patients. Just remember that even though all the surgery you've had and may have in the future is rough, it really is the best thing for you, because without a colon, you can't get colon cancer. I only wish that your mom had known that she had the gene earlier so that she might have been able to avoid all the suffering she went through.

Isn't it nice to have little furry loveballs to snuggle during the hard times?

Best of luck with the future of your health. Be strong, hang in there! You can do it!!!

Hi...I had never heard of FAP before...but I went and read a lot on the sight that you gave.
I`m sorry that you have had to go through the surgeries and the loss of your Mom. It must all still seem so unreal to you right now.
Bless your heart for being there for your Mom like you were.
I`m glad that you have had the surgery and I pray that you have a long and wonderful life.
We`re happy to have you back with us here on TCS.....come and talk whenever you like. We`ll be looking for you!
Linda

I am so sorry about your loss. I can't imagine how painful it must be to lose your mother. I pray that you are able to get the treatment that you need and that you stay healthy.

Oh, darlin, I'm so sorry about your mom. My parents don't have FAP, but both have had most of their colons removed because of tumors, and I know it's a very rough surgery. You must be a very strong person to come through all of this -- but as others have said, you're allowed to be a kid, too. Count me among those who are here for you if you ever need to talk.

And I hope you will always take great comfort in the fact that you were there for your mom. I know your loving care made her passing a thousand times easier.

I am sorry for your loss. Nobody will mind that you have not been here, you have been through too much. I can only imagine how you must feel now. Good vibes.(((((((((((((((((((((((((((((((((((((((((((((((((((((


We all wish you well.