Hi, I thought I would update the thread, since I havent been around a computer in a while. Sarah is recovering well from the second surgery, but she is having some problems. It looks like her brain stem got squeezed down into her spinal column twice--before both surgeries, when she was experiencing massive swelling in the brain. When it got squeezed, it damaged her visual cortex and even though nothing is wrong with her eyes or optic nerve, there is brain damage on the cortex, and she has (probably) permanently lost her vision.
Now that she is starting to be conscious and lucid for larger amounts of time, she is realizing that something is horribly wrong. She keeps feeling her surgical scar (which now goes from ear to ear over her head) and is starting to feel scared and alone by her vision loss. The Neurosurgeon came in and talked to us, but in front of her, so she got some massive bombs dropped on her: that she had 2 brain surgeries, that her tumor is a glioblastoma, which is extremely malignant and aggressive, that she will undergo chemo and radiation, that she will not regain her sight. She did, as anyone would, and started bawling. Poor poor baby!
Oh, it just breaks my heart to see her so scared and alone in the hospital.
Even though we are all there I can tell she feels really alone.
Does anyone have experience getting through something like this?