or Connect
TheCatSite.com › Forums › General Forums › IMO: In My Opinion › Creation of "designer babies" to treat blood disorder
New Posts  All Forums:Forum Nav:

Creation of "designer babies" to treat blood disorder

post #1 of 4
Thread Starter 
Full Judgment from the House of Lords:

The House of Lords upheld a lower court decision on the legality of the creation of "designer babies."

The case centred on six-year-old Zain Hashmi, whose parents wanted a baby with a specific tissue type to help treat his debilitating blood disorder. (beta thalassaemia)

His parents had begun treatment to create a baby, but have so far failed.

The five Law Lords ruled unanimously that the practice of such tissue typing could be authorised by the Human Fertilisation and Embryology Authority (HFEA).
post #2 of 4
I think most parents would scale Mount Olympus If it meant their ill child could be cured of a horrific illness like this one or one just as awful. If she delivers a child that can help her eldest, imagine how treasured this child will be. I'd imagine the siblings would have a very special bond.
post #3 of 4
I read about a similar case in Reader's Digest 10 years ago. Their 20 year old daughter had a disease (leukemia?). No other family members blood/marrow would match. There was a 1 in four chance that a new siblings marrow could. They went ahead and had another child (a girl), and her bone marrow matched. According to the article, the two sisters were very close. I don't know how they are 10 years later, but I imagine if I could save my sister's life, I would be glad to do so.

ETA: I went searching and found out those people's names. Here's a 2004 update.

Nov 29, 2004 12:32 pm US/Pacific
LOS ANGELES (KCBS) How far would you go to save the life of your child?

Fifteen years ago, one middle aged couple decided to have another baby, to save the life of their dying teenager.

It was a national controversy, but today the Ayala family is at peace with their decision.

CBS 2 anchor Linda Alvarez spoke with Anissa, who is now a grown woman trying to save other lives, and her younger sister Marissa.

They both feel they were given the gift of life.

This is how you might remember them.

Nineteen-year-old Anissa Ayala, embracing her baby sister Marissa -- the sister who saved her life from a deadly form of leukemia.

It's a vivid memory even now, 14 years later.

"That's all I wanted to do, to be able to hold her and let her know that what she'd done for me was truly, I was just so thankful."

Marissa donated her bone marrow to give Anissa a second chance at life.

But here gift became a huge national controversy.

Marissa had no choice -- she was just 14 months old.

In fact her very birth sparked ethical debates. But her parents Abe and Mary Ayala had no doubts about their decision.

"We had Marissa because we wanted a baby, but there was a special reason. We did it because our daughter was dying and we thought there was a chance, one slight chance and we were willing to take that chance."

"It was a really hard time for all of us, especially for my mom. My mom was pregnant, she was dealing with a child who was dying, mom was really trying to support my brother with his last years of high school and yet she had all these people saying what did you do."

Strength and "faith" go them through it.

"I was absolutely positive that when I got pregnant that a miracle was going to happen.
Today that miracle is 14 years old.

"People who thought that my birth was just to have this child a match and they were going to be done with it, but that wasn't it at all. They still love me; they care for me. Even if I wasn't a match they wouldn't love me any less."
With Marissa -- the family of four became a healthy family of five.

Anissa survived and grew stronger as Marissa grew up to be an active loving child devoted to her big sister.

"She just makes me so happy, we love spending time together. I'm just very thankful that she's still here."

"I think she's such an angel, she's just beautiful. I think that she has a mission in this life. She's already given a second chance at life to someone and not many people can say that they've given a second chance at life to someone."

Ever since her recovery, Anissa says it's her mission to encourage people to be bone marrow donors.

Now she is the assistant director for the National Marrow Donor Program, and heads up a foundation to work with families who need marrow transplants.

Here's how you can help:

National Marrow Donor Program
post #4 of 4
Thank you, mrsd - that was the story I was looking for. I had mixed feelings about the issue back then, but decided I couldn't really come to any conclusions, not being the parent of a mortally ill child.
New Posts  All Forums:Forum Nav:
  Return Home
  Back to Forum: IMO: In My Opinion
TheCatSite.com › Forums › General Forums › IMO: In My Opinion › Creation of "designer babies" to treat blood disorder