Hello,
Some of you might have read my other thread, but I'll recap for those who didn't.
My sister's boyfriend, Duncan, has a condition called Addison's disease. It's a form of primary adrenal insufficiency, which means that his adrenal glands don't produce important hormones. He has to take pills several times every day to get the hormones he needs, and still has lots of problems associated with the disease, because hormone replacement can never work as well as the real hormones would.....and in this case, it's worse because these hormones play roles in tons of systems....everything from regulating salt absorption to releasing glucose between meals. In short, he has a pretty serious disease.
Unfortunately, he's been having problems with his legs (spastic paralysis). After being told by numerous doctors that it was unrelated to addison's, somebody FINALLY consulted the head of neurology at another hospital. He said it sounds like adrenomyeloneuropathy, another condition that is associated with Addison's. If this is in fact the case, what's going on is that his spinal nerves are being demyelinated, which is like stripping the insulation of an electrical wire.
He needs to see a neurologist, but the hospital says the referral to the head of neurology guy (at the other hospital) has to be from THIER neurologist, and Duncan can't get in to see him until next week. My sister is trying to get in touch with neurology department at the other hospital, but hasn't been able to yet. They're closed for the day.
With all this to deal with, Duncan's addison's has been hard to control (it reacts to stress) and he's been feeling terrible. My sister just called to let me know that he's been hospitalized and put on an IV and heart monitor.
I'd really appreciate it if you guys could send good vibes or pray for them or whatever you do that makes that board magic....I can pass it on to my sister and Duncan. Maybe reading your replies would make him feel better.
sorry this post was so long, guess I'm rambling a bit.
Some of you might have read my other thread, but I'll recap for those who didn't.
My sister's boyfriend, Duncan, has a condition called Addison's disease. It's a form of primary adrenal insufficiency, which means that his adrenal glands don't produce important hormones. He has to take pills several times every day to get the hormones he needs, and still has lots of problems associated with the disease, because hormone replacement can never work as well as the real hormones would.....and in this case, it's worse because these hormones play roles in tons of systems....everything from regulating salt absorption to releasing glucose between meals. In short, he has a pretty serious disease.
Unfortunately, he's been having problems with his legs (spastic paralysis). After being told by numerous doctors that it was unrelated to addison's, somebody FINALLY consulted the head of neurology at another hospital. He said it sounds like adrenomyeloneuropathy, another condition that is associated with Addison's. If this is in fact the case, what's going on is that his spinal nerves are being demyelinated, which is like stripping the insulation of an electrical wire.
He needs to see a neurologist, but the hospital says the referral to the head of neurology guy (at the other hospital) has to be from THIER neurologist, and Duncan can't get in to see him until next week. My sister is trying to get in touch with neurology department at the other hospital, but hasn't been able to yet. They're closed for the day.
With all this to deal with, Duncan's addison's has been hard to control (it reacts to stress) and he's been feeling terrible. My sister just called to let me know that he's been hospitalized and put on an IV and heart monitor.
I'd really appreciate it if you guys could send good vibes or pray for them or whatever you do that makes that board magic....I can pass it on to my sister and Duncan. Maybe reading your replies would make him feel better.
sorry this post was so long, guess I'm rambling a bit.
