Ok I am a whimp and I know it

My urologist has been treating me since April 04 for Severe Interstitial Cystitis. Some may or may not know what that is, long explanation made short, it feels like you have a really bad urinary tract infection 24/7/365 magnified x 100. I have been fighting this for over 8 years before I found out that I have this condition with several doctors telling me that "It is all in my head".

I have had 12 treatments where medication has been placed in my bladder hopefully to give me some relief from this living nightmare. So far I seem to be taking 2 steps forward and 5 steps back as far as improvement. Now he is scheduling me to do another surgical procedure that is a Cystoscopy & Hydrodistention.

Basically where he will put me to sleep and over extend the bladder hopefully to give me some relief. I had this done back in August only there was a biopsy done at the same time. It was one of the most excruciating things I have ever been through in my life and I didn't think there was that much improvement then. He thinks that together with the previous 12 treatments and this procedure it will help me.

I am terrified! I stay in enough pain without extra from the procedure. Yeah I know I am a total whimp Could a get some vibes and lots of prayers please? This will be done this Thursday and I am scared to death

Sorry if I am giving out waaaay to much info, I just don't know where else to turn for support.

Cathi you are not a total wimp at all! You are so brave for going through this!

Lots of board magic going your way for thursday Cathi.

Cathi,

Please try and not be scared. They will put you on a pain management course of medication that will help you get through the bad patches. I do wish you the best and have put you on my prayer list-

lots of .... to you!!

i had a biopsy.... last year in july.. and it was so awful, i didnt walk for like 3 days.. and, i though that i was a total wimp for it

Dear Cathi, you are no wimp! Sending you lots of support vibes and good thoughts!

Originally Posted by blondiecat

I have been fighting this for over 8 years before I found out that I have this condition with several doctors telling me that "It is all in my head".

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Doctors are sometimes really wrong...and sometimes very unsypathetic...Yes it is true that 90% of the time they know what there talking about...But when they are wrong they can be so stubborn...Even though we know how we feel and they dont......I have a story for you....

About a year ago my right arm from my neck to my finger tips went numb suddenly...I had no clue why...My dad thought I was having a stroke..but I am only 23...but alas I am a 23 year old hypercondriac...so I was scared to death..I went to the doctor and they thought it was one of 2 things..either it was a brain tumor or I had MS..They wern't sure which one I had but they were positive it was one or the other..I was sent in for an emergency MRI..and without insurence let me tell you this is VERY expensive...Then they made me wait...I prayed it was MS..people live full lives with MS...How sad is that...A week later with no word I angrily called them...They said my MRI was fine, and then heavily implied It was all in my head...I couldnt even write my name, but they were telling me it was in my head...then the doctor says to me "I hope you find the answers youre looking for"...Now wait a minute didnt I just shell out 2 grand so they would find the answers for me.....And my arm was still numb..I couldnt perform my job...when i reached behind my back to unclip my bra I always jumped because I thought someone else was touching me..It was awful...Then an ANGEL named Marie came to me...She was a friend of my boyfriends mother..She was also a massage thrapist, and a spiritual healer.....When I went to her place she took one look at me and just by the way I was standing could tell that I had Carpel Tunnel!!!!! Carpel Freekin Tunnel...3 sessions with her and I was better then I had ever been..and I have not had a problem since.......

I told you this story for a couple of reasons...
1. I wanted you to know I have felt your frustration with doctors
2. To erge you to get a 2nd (or 18th) opinion
3. To ask if you have looked into alternative healing
4. To let you know I hope the best for you, and hope in the end you can beat this

I agree you are NO wimp!!!!!

know that we will all be 'there' with you as you go through this procedure
my thoughts & love are with you

Awwww Cathi your not a wimp!, nobody likes going into hospital.

Sending (((((postitives vibes))))) for thursday

Sending you good vibes for Thursday

I hate going to the hospital too for all these things! I will be thinking of you!

You are not a wimp!! No way!! I hope everything goes ok. I'll be sending truck loads of vibes your way

you arent a wimp!!

sends you all the good vibes

You are definitely not a wimp Cathi. Big to you. I'll be thinking of you on Thursday.

This is the 'no wimp' support group! I know how painful ordinary cistitis can be and I feel for you, for I am sure yours is much worse. I agree about looking at alternative medicine too - sometimes diet changes or acupunture can make a huge difference. Please keep up your courage - we are all feeling for you.

Originally Posted by jennyranson

This is the 'no wimp' support group! I know how painful ordinary cistitis can be and I feel for you, for I am sure yours is much worse. I agree about looking at alternative medicine too - sometimes diet changes or acupunture can make a huge difference. Please keep up your courage - we are all feeling for you.

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she she knows what I am talking about........again good luck to you

You are NOT a wimp! I had a UTI a few months ago and I was in pain, I can't even fathom how you must be feeling, and especially after such a long time! I'm sure they'll give you some great meds so that you won't be any pain, and you will be in my prayers, of course!

Cathi, you are not a wimp. I am so sorry you have been going through this pain for so many years.

You are in my thoughts. Sending you mega healing vibes and speedy recovery vibes!

Not a wimp in my book, my friend! Lots of prayers coming your way from me and Charlie ! {{{HUGS}} too, 'cause they never hurt either!

You are most definately not a wimp!
I can't imagine what you must be feeling
I'll be thinking of and praying for you that all of this finally get resolved.

Cathi honey, believe, your no bigger a wimp than any of us here. Let me tell you, the word doctor makes my heart beat faster. I'm the biggest wimp I know. I've had some pains that my gyno/doctor has been working on for almost a year now with no success as to what can be causing them. On January 6, I am going into the hospital for a laporoscopy. They want to go in and look around with a camera to see what they can find. I pray the find out what the problem is and fix it! Being in pain stinks......

You'll be fine, and I hope and pray that this does the trick for you.....

Thank you all for your thoughts and well wishes If this does work to lower my pain level it will be a temporary fix at best. This condition that I have has no cure, only thing is to try and find something to keep me and others that have this comfortable.

You are right living in pain stinks Over the years it has progressively gotten worse to the point of where it has taken over my life I can't let this win, I just can't It has taken a fairly active woman who used to walk 5 miles a day and reduced her to the person that can barely walk to the mailbox at times. I look in the mirror and I don't know who that person is anymore, reflections in the mirror of pain staring back at me.

My procedure is at 8:30 am, so please all keep the vibes coming....please