Sitting here in pain once again

Blondie , I would make sure that you talk about everything to your DR . That is very important , so maybe you can gain trust in him . Also tell him about the pain and what the other DR did and not did , this is very important for you and the DR . If you need too , write it all down on a peace of paper so you will remember what you want to ask . Don't laugh , I do that b/c I know I will forget when in the DR office .

Originally Posted by PurrfectCatlove

Blondie , I would make sure that you talk about everything to your DR . That is very important , so maybe you can gain trust in him . Also tell him about the pain and what the other DR did and not did , this is very important for you and the DR . If you need too , write it all down on a peace of paper so you will remember what you want to ask . Don't laugh , I do that b/c I know I will forget when in the DR office .

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I've been sitting here typing out a word document so I can give this one my history in black and white. I do plan on letting this one know how I was treated when I had those 3 surgries and also what I can't deal with now. I know that my main problem is I don't trust any of them anymore.

I finally found a Dr. for this UTI problem that has been plaquing me for several years, and it took all I could do to have that minor surgery done a month ago. I wasn't cut open though. They dilulated the uretha to open it up so I could urinate normally. I'm sorry if this is way to much info for anyone I just need to get this off my chest. Ken bless his heart has a great shoulder to cry on but I don't won't to constantly cry on his shoulder. He may think he has an overgrown baby for a wife

Not too much info at all, Cathi. I'm so sorry you're still in pain and feeling so upset tonight. You have a wonderful idea to type out an organized document for this Dr. to see your medical history. You have every reason to be afraid of having another surgery.
Stephanie

I don't know what to tell you, except I hope you feel better. Living on pills sucks too... I have horrendous migraines, very often, and I have Vicoden for them, and while it gets rid of the pain, living with a fuzzy head is almost not worth it. I hope they figure something out and you can avoid another surgery, or they find a way to permanently eliminate your pain...

Originally Posted by blondiecat

I've been sitting here typing out a word document so I can give this one my history in black and white. I do plan on letting this one know how I was treated when I had those 3 surgries and also what I can't deal with now. I know that my main problem is I don't trust any of them anymore.

I finally found a Dr. for this UTI problem that has been plaquing me for several years, and it took all I could do to have that minor surgery done a month ago. I wasn't cut open though. They dilulated the uretha to open it up so I could urinate normally. I'm sorry if this is way to much info for anyone I just need to get this off my chest. Ken bless his heart has a great shoulder to cry on but I don't won't to constantly cry on his shoulder. He may think he has an overgrown baby for a wife

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Blondie , I am glad you are writing that all down . Btw , I don't much trust Dr's myself to much . How ever , I am sure if you talk it all over with your new Dr then you may also know how you feel about going on with what need to be done , even surgery . But you have to be clear with yourself about it what you want to do . That is the most importang thing for you right now . Know in your heart what you want to do and you will feel better too . I hope you know what I mean .
Be sure I will keep you in my prayers

You are in my thoughts Cathi ..... Hope You get a good nights rest with Oscar and the Sammycat to look over You.

Cathi....I am so very sorry to hear you are in so much pain!!!! My thoughts and prayers are with you!!!!! Please let us know how it goes Monday.

Well I just got back from seeing the surgeon. He has told me that all of my problems are bladder realted and there is nothing he can do for me. I don't know which way to turn now I have called my urologist and told them what he said, they want me to get the information faxed to them and then make me an appointment to go back to the urologist. I feel like I have gone in a complete circle and I am banging my head on a brick wall I am sitting here at work and trying my best not to cry I have gotten so frusterated that I don't know what to do anymore. Still in pain and no relief in sight

Aw honey, I'm so sorry. I wonder if you have a urinary tract infection?
I know they feel horrible and make you want to just crawl into bed and die.
can you go somewhere else and get another opinion? if these doctors are giving you a run around, then go to someone else? that's what I did when Clinton doctors couldnt figure out what was wrong with me and why I was having seizures, I flat out told them to refer me to Iowa City and that I was wasting my time with them and they were only basically out for my money.
They refered me and I have been satisfied since.
BTW: I also take Cran max, a vitamin that's designed to help with well the bottle says " promotes urinary tract health" so mabye you might want to look into that. i get many yeast infections from all the meds I take but this really helps. Just something for you to look into. hope you find your answer.

I'm so sorry cathi, I hope the Urologist can give you some news about what he can do to help now that they've got it locked.. I guess that's the only positive way to look at it. Love from the Smith Camp

Oh, Cathi, I'm so sorry. You must just be so frustrated ! Did you ask if they could prescribe something that would be effective for your pain without having to be concerned about the risk of addiction?

I am so sorry Blondie . I don't know what else to say , only that my is going out to you .

I will keep you in my prayers that the DR's will find a pain free solution for you some how

Thanks Guys You are all the very best. I hope that I can find someone who can help me without them telling me it's all in my head. I can tell you this it isn't. There is visible blood in my urine(sorry there I go again with TMI) I am having a hard time describing the pain to the Dr.'s but I have given them my best description I can. Pinching and squeezing feeling isn't any fun when it is a constant thing Somedays it is tolerable and I don't have to take anything other days it is unbearable and I have to take meds for it I just don't know what to do now except put up with it like I have done for the last several years

Honey, pllease, get another opinion. I ended up in the hospital because of a misdiagnosis, so before you end up there, please, please, get another doctors opinion.....I know you're feeling so frustrated right now but seriously, just go to another doctor, if you have to go out of town then do it. I"m begging you, don't put it off anymore, it's for your health sake.

Hey sis find out if this new gamma knife that AMH has can be used to help with your problem. It was just a light bulb over my head a little dim but a thought. Welcome to my world the pain world that is. Big Bubba