Oh Debby...you sure didn't need another bout of bad news.
(((((HUGS)))))
(((((HUGS)))))
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Amber's eye
- Thread starter debby
- Start Date
Debby, I'm so sorry to hear all the troubles. Just take each day, and focus on finding a positive direction that will help you live through it.
If it will make you feel any better, Rob was born with the same thing that Amber now has. He had to wear the patch when he was young, and it will strengthen the eye muscles. Rob never did use the patch as much as he should have, and therefore his eye still drifts out of alignment. But this is only noticable when he stares and concentrates on one object.
Other than that, he has no problems. Don't worry about only having 'one' perfect eye, there are many things worse and this is a minor thing in the bigger reality. Rob, along with many others live with it on a daily basis.
If you have any questions, PM or email me.
If it will make you feel any better, Rob was born with the same thing that Amber now has. He had to wear the patch when he was young, and it will strengthen the eye muscles. Rob never did use the patch as much as he should have, and therefore his eye still drifts out of alignment. But this is only noticable when he stares and concentrates on one object.
Other than that, he has no problems. Don't worry about only having 'one' perfect eye, there are many things worse and this is a minor thing in the bigger reality. Rob, along with many others live with it on a daily basis.
If you have any questions, PM or email me.
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No you sure don't. Best of luck with the patch, maybe she will just leave it alone and some of your fears will be groundless.
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- #24
Thanks!
But if it were only the appearance aspect of it I wouldn't worry at all...that can be corrected...but I am so worried she will be blind in that one eye.
I am going offline now...talk to you all Friday. *hugs*
But if it were only the appearance aspect of it I wouldn't worry at all...that can be corrected...but I am so worried she will be blind in that one eye.
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Aw Debby, I am so sorry for all your troubles, you have had an awful year!
With Amber, you know that things will improve. I had to wear a patch on one eye at her age, and my parents managed. I had to do all sorts of exercises for years that kept the eye muscles strong, and they worked. When I wore glasses, my parents had to put tape over the good eye to force me to use the bad one. It is not the same problem as Amber, but similar (I don't "resolve" vision in my bad eye, so I can't read with it). And you know, I do worry about losing sight in my good eye, but that just means that I am always very very careful and protective, its second nature.
Its awful to find out that your baby is not perfect! But really, she will be fine. And she will be used to the patch. I wore mine for years, for a few hours a day. They had to tape it to my face when I was a tot. And I am very glad that my parents did that, because the cosmetic improvement (both eyes tracking together) was very very important to me as a little girl. And now, when I am tired, my bad eye wanders, but not really noticeably, and I know what to do to bring it back in line.
With Amber, you know that things will improve. I had to wear a patch on one eye at her age, and my parents managed. I had to do all sorts of exercises for years that kept the eye muscles strong, and they worked. When I wore glasses, my parents had to put tape over the good eye to force me to use the bad one. It is not the same problem as Amber, but similar (I don't "resolve" vision in my bad eye, so I can't read with it). And you know, I do worry about losing sight in my good eye, but that just means that I am always very very careful and protective, its second nature.
Its awful to find out that your baby is not perfect! But really, she will be fine. And she will be used to the patch. I wore mine for years, for a few hours a day. They had to tape it to my face when I was a tot. And I am very glad that my parents did that, because the cosmetic improvement (both eyes tracking together) was very very important to me as a little girl. And now, when I am tired, my bad eye wanders, but not really noticeably, and I know what to do to bring it back in line.
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Debby,
I know that you are upset, as any parent would be. But honestly, listen to the doctor. If her vision is seriously impaired in that eye, he is right.....she will never have known it to be any other way, and has already compensated for it quite naturally. The patching part sounds like the way lazy eye is treated, to strengthen the muscles so that the eye doesn't drift. She is still as healthy as ever, so don't feel as though she isn't.
I know that you are upset, as any parent would be. But honestly, listen to the doctor. If her vision is seriously impaired in that eye, he is right.....she will never have known it to be any other way, and has already compensated for it quite naturally. The patching part sounds like the way lazy eye is treated, to strengthen the muscles so that the eye doesn't drift. She is still as healthy as ever, so don't feel as though she isn't.
I'm sorry you're going through this hard time. This probably doesn't help you much but naturally, this is much harder on you then it is or will be on Amber. Thank God your beautiful little tyke is able to see well out of one eye.
Debby - I sent you a PM.
Just wanted to add my (((hugs))) and prayers.
Things will brighten up.
Good luck with the patch and I do hope it ends up working. I can imagine it may be a challenge keeping it on a 14 month old. *crossing my fingers* that she doesn't try to remove it.
Things will brighten up.
Good luck with the patch and I do hope it ends up working. I can imagine it may be a challenge keeping it on a 14 month old. *crossing my fingers* that she doesn't try to remove it.
Debby just also adding my good thoughts and hugs for you! Good luck with Amber and wearing the patch. I'll be thinking about you.
Oh Debby, I'm so sorry to hear about Amber's eye trouble. You have to try and stay optimistic Debby. As the doctor said, it may be a very mild visual impairment and even if it's not she will never know the difference. It's important that you remain calm and relaxed about it. Amber can't understand a lot but she sure can pick on your moods. If you're anxious and worried then she is more likely to get upset. Try and make the patch into a game - you don't want her more stressed over your own worries.
You sure did have a lot coming your way this past year. Try to look at the bright side though. Your tumor turned out to be benign (which in my book is probably the best news possible), and as you stop working at that dreadful factory, you can now spend more time with your lovely baby (and enjoy the best age of all, IMHO). Sure, other things are happening around you, like your brother's divorce etc., but don't take it all on yourself. Some things you have no control over, so try no to fret over them. Focus on the good in your life Debby. It is there - just look at your baby!
You sure did have a lot coming your way this past year. Try to look at the bright side though. Your tumor turned out to be benign (which in my book is probably the best news possible), and as you stop working at that dreadful factory, you can now spend more time with your lovely baby (and enjoy the best age of all, IMHO). Sure, other things are happening around you, like your brother's divorce etc., but don't take it all on yourself. Some things you have no control over, so try no to fret over them. Focus on the good in your life Debby. It is there - just look at your baby!
Please don't get upset when I add this.
When I was two, I was diagnosed deaf - my mother was so upset, she thought that my life was over as she knew it, she thought I would never live a normal life. But as I got older, she started to see that I can live a normal life. Being deaf does not stop me, I can do anything, I just can't hear. Amber WILL be okay, and so will you.
When I was two, I was diagnosed deaf - my mother was so upset, she thought that my life was over as she knew it, she thought I would never live a normal life. But as I got older, she started to see that I can live a normal life. Being deaf does not stop me, I can do anything, I just can't hear. Amber WILL be okay, and so will you.
Oh Debby - you have been through too much. My heart is breaking for you. I will addd my prayers for Amber and hopefully they will help. Just remember, she will always be your little girle and nothing can ever change that. Sometimes adversity makes us stronger, so this may be the thing that propels Amber to greatness!
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Debby-
I risk a lot in saying this. I risk the friendship given to me long ago by a girl who needed a big sister of her own. But it is that old friendship that prompts me to say this.
The old adage about "there is a glass in front of you half-full of water is the glass half-empty or half-full" comes to my mind. Lately your glass has been half-empty and full of holes. You have the power (although you do not think you do) to plug those holes and make that glass half-full. You have the power to change your thinking, your situation and your life. Your optimism has faded over time and that saddens me. I know what it is like to have a full plate. To have a doctor stand over you and deliver words that crush your soul, words that could destroy a life for a very long time. I am sorry, but I don't see those type of words in your posts.
You HAVE a WONDERFUL healthy little girl. Celebrate her, enjoy this time with her and don't let dark thoughts rob you of the brightness of the true joy of her and sink you down into the pits where you have been spending your time lately. You have SO MUCH and your life could get better- but only YOU can do something to make this happen , no one else has that power but you.
I risk a lot in saying this. I risk the friendship given to me long ago by a girl who needed a big sister of her own. But it is that old friendship that prompts me to say this.
The old adage about "there is a glass in front of you half-full of water is the glass half-empty or half-full" comes to my mind. Lately your glass has been half-empty and full of holes. You have the power (although you do not think you do) to plug those holes and make that glass half-full. You have the power to change your thinking, your situation and your life. Your optimism has faded over time and that saddens me. I know what it is like to have a full plate. To have a doctor stand over you and deliver words that crush your soul, words that could destroy a life for a very long time. I am sorry, but I don't see those type of words in your posts.
You HAVE a WONDERFUL healthy little girl. Celebrate her, enjoy this time with her and don't let dark thoughts rob you of the brightness of the true joy of her and sink you down into the pits where you have been spending your time lately. You have SO MUCH and your life could get better- but only YOU can do something to make this happen , no one else has that power but you.
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Kellye couldn't have said it any better.
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- #37
you are human,frist second's of new's (good or bad) will throw anyone.Anyone would have recated(sp) the same way.I know I would have.
Just like I did when I found out my granddaughther was a down's baby. today she is a year,and I treat her just like all of my 5 other grandchildern.
Just like I did when I found out my granddaughther was a down's baby. today she is a year,and I treat her just like all of my 5 other grandchildern.
Debby, your reaction is normal. I would feel the same way at first as well. But she will grow up to be a normal child, and I know she will have a wonderful childhood, with a great mother like you.
Hang in there, all will be okay.
Hang in there, all will be okay.
Sorry to hear that it was not correctable w/ surgery. But I bet the patch will work for you! And even if it does not, just have faith that she will be fine. Children are born all the time w/ imperfections, and although they are challenged most of them do just fine. And I'm sure Amber will as well!
