My story with FIP

valerie34952

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I decided to start this page to help others with our problem. My mother (who does tireless work for Domino's House, a cat rescue league) insisted that I share my story so that others could possibly benefit from our story. So here it goes.

Jerry is our "son". He is approximately 10 years old and we adopted him from the humane society. In August, he came down with a severe gastro. problem. He was at the vet for several days, on multiple medications, underwent an ultrasound and ultimately discharged. From August to January he lost 6 pounds, which was 1/3 of his body weight. Due to diarrhea, we brought him back to our doctor in January. It has been downhill ever since. He has been on multiple antibiotics, too many to count and steroids, and nothing worked. He underwent another ultrasound and has pancreatitis. Bottom line is our doctors diagnosed him with FIP. He is no longer the same chatty, beautiful, wonderful cat we had a year ago, or even 6 months ago. Our doctor looked depleted. He knew this was a death sentence. His fevers can get as high as 105, which is why most cats with FIP die. At that point their organs shut down. Each time this happened we ran him to the vet and they kept the fever under control.

Then...looking on the internet I found something called Polyprenyl Immunostimulant (PI for short). My vet had never heard of it and consulted with an internist who expressed an interest in using the same thing. The problem..It cost about $400.00 every 2 1/2 weeks and is very new to the market. I believe it has only been on the market for about a year. My boyfriend and I are lucky and we can afford it so we are trying. He has had three doses and seems better now than last week. He is certainly not worse. I decided to blog on this subject to give people an understanding of this "medication". My understanding is that some cats have responded, but not all. It seems it only works with the Non-effusive type of FIP (there is wet and dry forms). Luckily we think Jerry has the dry form. This medication is actually not for the treatment of FIP (there is no clear cut treatment), but suggests it can help with the disease. This needs to be caught early, which we think it was. This seems similar to treatment for human AIDS, where their immune system needs to be boosted. So for now, he is tapering off his steroids, finishing up the last round of antibiotics and our hope is that this PI works. I will try and keep up with this site to let people know the outcome. We have had a hard 8 months with our "son". We have not yet felt it was time to put him to sleep as he does not appear to be in pain. We are in love with this cat and if my experience can help others or educate them, I want to do it. I'll keep everyone posted and thank you for listening to my story.
 

denice

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They have been using it for awhile for stubborn upper respiratory infections and have had some success with extending life and quality of life with dry FIP if treatment is started soon enough.  The main issue for most people is the cost of the drug.
 
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di and bob

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Thank you so much for sharing your story. I know if one of my 'sons' needed the medicine I would do everything I could to buy this medicine. Thanks for one more weapon against this terrible disease! PS I'll pray for Jerry to recover, or at least be comfortable and happy, there are miracles you know! God bless.
 
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valerie34952

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Thank you.  Yes, we are praying for a miracle.  I wanted people to know that sometimes vets/doctors do not have experience with all new medications.  I love my vet, but he admitted that he had never heard of this drug as a treatment for FIP.  I researched it myself on line and called him. People should never be afraid to share with their vets something they learn on the internet.  This drug was experimental for FIP not too long ago.

We will see what happens in the next week or so.
 

jodiethierry64

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Thank You Valerie, this is a horrble disease and every feline parents nightmare. I'm going to pray hard for you and your son. Please keep us posted.
 
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valerie34952

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Well today is a good day.  He seems happier today and moving around much more.  We are scared to actually say the words "looking better" for fear it will curse us, but he is definitely not worse.  He does not want us to touch his back, but I understand with pancreatitis their back can give them some problems.  However, he has had 3 doses of the PI now and again, not worse. Tried to find a good pet insurance that will cover pre-existing conditions including the medication to no avail.  Any recommendations on that would be appreciated.

To be continued...
 

jodiethierry64

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Hi Valerie, hopefully someone can help you with the pet ins. I personally don't have it.

I feel your pain. My babies are my children. My husband and I are praying for your sweet Jerry.
 

catpack

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Our rescue is also using PI to treat a suspected case of dry FIP in a 9 mo old kitten. Today will be her 6th dose.

This kitten also had a cobalamin deficiency and is now on monthly B12 injections. She is also on a digestive enzyme to help break down her food. (She still has a healthy appetite...eating 5.5-9 oz of canned food daily.) Her weigh gain is slow and she currently only weights 5.3 lbs.

I look forward to hearing your updates. Our kitten is the "guinea pig" for both our rescue and our vet clinic. Hoping for positive results.
 
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