ALS and my new life

sibohan2005

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After my cat Duke died I kinda avoided the site... it broke my heart to be talking about cats without my baby near me. Then When Sibohan died last year I came back on and off but my heart still wasn't in it.

I adopted Jasper a rescue cat last year he is a big orange tabby who thinks hes a dog because he imprinted on Kyra like a child. He is a little terror but I love him to pieces.

Not long after adopting Jasper my life was turned upside down.

My dad was diagnosed with ALS (Amyotrophic Lateral Sclerosis,) also known as Lou Gehrig's Disease. It is a disease that effects the nerves of the body and will eventually kill him, there is no cure and no treatment. Most people diagnosed with this disease die within 5 years from diagnosis.

His motor functions will slowly shut down to the point where he can't walk, talk, or even breathe on his own. Right now he has trouble walking and uses both a cane and walker. He has trouble swallowing and eating and his speach is slurred. I try my best to have patience but he gets so frustrated and angry when we can't understand him. He has given up driving on his own and my mom is his main caregiver but she has fibromyalsia so we also get nurses in to help with every day tasks when I am working.

As you can probably understand I fell into a deep depression. Never feeling that anything I do can help and nothing makes me feel better.

I just recently graduated from Medical Administration at College and have been pressureing myself to the extreem to find a job that will allow me to help my parents and help to pay for the things that dad will need.

It will be a year since Dad's diagnosis in November and he is doing relatively well. He is still able to walk, talk and get around in a generally okay way but he has lost alot of weight and muscle.

I still have my dad and I have realized recently that I need to live my life to the fullest and enjoy my father as long as I have him.

Yesterday I rescued a cat, even though I have quite enough on my plate. But this kitty NEEDED me. She was neglected, matted and had a vitamin defficiency.

As long as she stays out from under Dad's feet everything is good. I am still looking for a forever home for her but she is getting associated with Jasper and I hope things will work out in the end.

So that is what has been going on in my life. I just wanted to say that I appreciate the support I have gotten from everyone in the past.
 

yosemite

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I'm sorry you are going through this with you dear dad. My friend lost his only son when the boy was just in his early 20's from ALS. It's a dreadful thing.
 

Winchester

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I'm sorry; this has to be difficult for you.

Congratulations on the new kitty. Has she been named yet?
 

callista

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Hey--That sounds like it must be difficult for you.

I have a friend with muscular dystrophy (which is something like ALS), who's a fellow student at my school. He was diagnosed as a little kid, and he's pretty happy, as happy as anyone else I know. I think it must be the hardest just after diagnosis, when you are getting used to the idea that things are going to change; after a while, things seem to even out, with the disability as part of your normal life. I guess you and your dad are going through that first really tough part right now. But from everything I know, things get better. The way they told you "five years" isn't quite correct because it's not a hard and fast limit--lots of people live longer than that, especially people like your dad who have a slow progression; and there are useful therapies and technology that will come in handy. Even with very little muscle control there are ways to communicate, like a computer/camera combination that can read where you're pointing your eyes, so you can use your eyes as a mouse cursor. Simpler stuff can help too; like there are programs you can get for an iPad that will say things out loud for you that you type or select from a menu or whatever. Can you and/or your parents talk to an OT or speech therapist to maybe get your dad a better way to communicate? I totally believe you when you say how frustrating it is for him when they don't understand; maybe a backup would be useful.

Anyway, I hope things get better for you. Please, please make sure you get lots of time to relax; because if you are trying to take care of somebody else, you can't do it well unless you take care of yourself first.
 

otto

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I'm so sorry for your father's diagnosis. I lost my beloved uncle to ALS. His cat Jill was his caretaker, she never left his side, and insisted on inspecting everyone who came to visit, you had to pass an even more intense inspection to hug him, and she was in charge of all his equipment (breathing machine for example) When he got too frail to have her on his lap, she knew it, and no longer got on his lap, but was given a special stool so she could still stay close to him.

Perhaps the new little one will be a special friend to to your dad.

 

ldg

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ALS is a terrible disease, and I am so sorry.


You sure have had a full plate. You deserve some smiles, and I hope this kitty helps (even though she's "just" a foster).
 

tara g

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I'm sorry to hear about your dad's diagnosis and your recent hard times
 

sweetpea24

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Originally Posted by Sibohan2005

After my cat Duke died I kinda avoided the site... it broke my heart to be talking about cats without my baby near me. Then When Sibohan died last year I came back on and off but my heart still wasn't in it.

I adopted Jasper a rescue cat last year he is a big orange tabby who thinks hes a dog because he imprinted on Kyra like a child. He is a little terror but I love him to pieces.

Not long after adopting Jasper my life was turned upside down.

My dad was diagnosed with ALS (Amyotrophic Lateral Sclerosis,) also known as Lou Gehrig's Disease. It is a disease that effects the nerves of the body and will eventually kill him, there is no cure and no treatment. Most people diagnosed with this disease die within 5 years from diagnosis.

His motor functions will slowly shut down to the point where he can't walk, talk, or even breathe on his own. Right now he has trouble walking and uses both a cane and walker. He has trouble swallowing and eating and his speach is slurred. I try my best to have patience but he gets so frustrated and angry when we can't understand him. He has given up driving on his own and my mom is his main caregiver but she has fibromyalsia so we also get nurses in to help with every day tasks when I am working.

As you can probably understand I fell into a deep depression. Never feeling that anything I do can help and nothing makes me feel better.

I just recently graduated from Medical Administration at College and have been pressureing myself to the extreem to find a job that will allow me to help my parents and help to pay for the things that dad will need.

It will be a year since Dad's diagnosis in November and he is doing relatively well. He is still able to walk, talk and get around in a generally okay way but he has lost alot of weight and muscle.

I still have my dad and I have realized recently that I need to live my life to the fullest and enjoy my father as long as I have him.

Yesterday I rescued a cat, even though I have quite enough on my plate. But this kitty NEEDED me. She was neglected, matted and had a vitamin defficiency.

As long as she stays out from under Dad's feet everything is good. I am still looking for a forever home for her but she is getting associated with Jasper and I hope things will work out in the end.

So that is what has been going on in my life. I just wanted to say that I appreciate the support I have gotten from everyone in the past.
I am so sorry that you and your dad are going through this. ALS is awful but you are right, you have to live life to the fullest and enjoy every moment with your dad. My dad died of cancer how I cherish the last three weeks of his life. I mean, I cherish all of the times with my dad, but those weeks were precious.

And now you have a new cat...somehow, I know you'll be fine. I took in my first cat, Schweppie when his original owner wasn't feeding him. I didn't like cats but said I would take care of.him until my sister-in-law could find a good home for him. As time passedx, I fell in love with Schweppie. I don't know what his name was but Schweppie is my version of 'Sweet Pea'. Anyway, he moves slowly, not because he's older, but I think he doesn't want to waste energy on needless moves. Sounds odd but he always surveys.where he's going to go before moving. My dad was slow in that he talked slow, moved slower than normal people (although he.could beat anyone on the tennis court), and his brain, though very intelligent, processed things slower. Every move, word or thought was well planned and precisely performed, like he never said anything superfluous. Also, Schweppie is the peacemaker and pillar of strength in my.pet family. If I'm irritated with my dog, he will come to me and meow some sense into me. If I am hurt, he will come to me and talk to me and make sure I am ok. Sometimes I have to pretend I'm not hurt so he doesn't get upset. My dad was always the peacemaker and pillar of strength in my family. He always made time to talk to us and make sure we were okay. The point of my long story is that I believe that Schweppie came to me for a reason-to keep my dad's spirit alive. It is really strange how similar he is to my dad. Sometimes when I look into his eyes, I think he can see right through me...as if to say, "hey girl, think about what you are doing". Schweppie also has kidney failure but he is taking it like my dad took his illness: with strength and courage.

So even though things are a bit crazy for you, have faith and you will get through this. Take it one day at a time and focus on the here and now. Take care
 

jcat

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I'm so sorry to hear about your father's diagnosis. I've lost two (extended) family members to ALS; it's a horrible disease. I wish you and your family all the inner strength you need to cope.
 

morningrl

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Sorry to hear about your father... What a rough year, indeed. Hopefully the kitty will give your mind a few moments of distraction form your worries... they are so sensitive to emotions and seem to know just when we need a cuddle. I'm also glad that you've come to realize the time you have left if precious... enjoy every minute with your father that you can.
 

larussa

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I am so sorry to hear this and I hope your Dad has many years left of doing well. I know it must be hard for you and family, sending many good to you.
 

duchess15

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Oh Rhonda....I am truly soooo very sorry. I can't tell you how sorry I am because I understand how you feel.

I went through it myself and I know exactly how you feel. Please, I beg you, please spend as much time with your dad as you can. When his time is up, you can't go back and fix it. I know...because I have many regrets that I can never go back and redo.

If you need someone to talk to, please message, call, or email me.

It is good to see you back on here, old friend.

Congrats on graduating!
Just keep looking and don't give up.
 

kailie

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I will keep you and your family in my thoughts hun! One day at a time, and we are here anytime you need to just vent or need a "shoulder to cry on".
 
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sibohan2005

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Thank you everyone for all the well wishes, I now remember how supportive and understood I felt here and will definately be around more.

My new Kitty is Named "Audrey" that is the name she came with but it suits her. She is overweight, and has been neglected she had matts in her coat and she is a shorthair. I will post pictures as soon as she comes out from under the bed for long enough LOL.

She is a brown Tabby with bronze blotches that show through the stripes. She is about 3 and when I get her down to an appropriate weight she will be stunning. She has greenish eyes and likes kneeding bread and licking my nose to wake me up.

I am trying to spend as much time with dad as I can. Which normally involves watching TV because he can't do alot of the things he used to. We play "Jeopardy" together in the evening while he can still speak and we are working at getting him a computerized communication device for speach in the future.

We are getting a "porch Lift" which is basically an elevator installed in the garage to take him in and out of the house when the need arrises. If you can believe it I found what would be a $6,000 dollar device on Craig's list for $500 and it works perfectly. The seller really didn't know what he had.

So every day as it comes and I am trying to see the little things every day because the big things will sort themselves out. Thanks everyone!
 

bluerexbear

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I am so sorry about your dad's diagnosis. My thoughts and prayers are with you both!
 
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