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I have Celiacs Diease

post #1 of 47
Thread Starter 
I sort of suspected and was suspicious for a few years due to getting gallstones in my teens (actually probably closer to 12-13 years old) when I didn't eat that fatty of a diet, and was very much underweight then. In fact until the last two years I've always been underweight.. which can be a symptom of celiacs, too.

The reason I was getting so sick and not digesting food well is because of all the inflammation from it. And back to the ER visit when my heavily wheat gluten laden meal of pasta made me extremely sick - not a virus or even bacteria, but wheat that made me so ill.

If anyone else has had digestive issues from fairly young, gallstones with no risk factors, get tested for celiacs.

I'm dreading going through the cabinets to find something edible for the next couple of days, I think I'll be stuck to meat only.
post #2 of 47
There are a lot more gluten-free products out there these days! Even pasta!
post #3 of 47
Thread Starter 
I know. Though there are a lot more things with wheat hidden in them then without. There are, for example, no places in town that I could go out to eat to (small town) with this.
The smaller grocery stores in town don't carry many specifically marketed toward gluten intolerance foods either, which is nice....
post #4 of 47
Sorry for the diagnosis but what great news that it is something that can be treated!

My dd was on a gluten free/casein free diet for 3.5 as part of our biomedical treatment for autism and food allergies. I learned a lot. Basically, you will have to learn to eat "old fashioned meals" consisting of a protein source and sides of veggies, potatoes, etc.

There are lots of sources online where you can learn and even order food. Kinnikinnick foods was our favorite online source for baked goods, mixes, etc. Also, talk to your grocery and ask that they begin stocking some stuff. "Tinkyada" brand rice pasta is absolutely wonderful--can't tell the difference.

Don't forget that many health and beauty products such as lotion and makeup have gluten in them. Even postage stamps do!

Good luck on your transition to the gluten free life. Don't expect perfection right away as it is a huge change.

Take care,

C
post #5 of 47
Have you tried quinoa?
post #6 of 47
Quote:
Originally Posted by CatMom2Wires View Post
Sorry for the diagnosis but what great news that it is something that can be treated!
I don't know anything about the disease, but I'm glad it's something that can be treated.

I'm sorry you're been feeling poorly, StrangeWings. I sure hope you get to feeling better soon!
post #7 of 47
Quote:
Originally Posted by Rockcat View Post
Have you tried quinoa?
There's also quinoa pasta
post #8 of 47
Thread Starter 
I've had it by itself before, not made into other products. I gagged, the texture was awful. I have a lot of weird textural food issues though… just thinking of couscous makes me shudder (it's much worse). That's actually something of a problem, I'm not too keen on some foods due to texture - anything that's more gritty or feels weird. (Corn tortillias for example )

What about V8? Is there anything hidden under "natural flavors" that I need to worry about?
post #9 of 47
I'm sorry to hear this but hopefully this can be cleared up with proper diet.
post #10 of 47
Well. It's not the nicest thing to be diagnosed with, but at least you have an answer now, and can learn to live with it. I don't know how I would be able to do gluten-free. But I guess with time and adjustments, you'll make it. Good luck!!!!

As for "natural flavors", you might just want to call the company to ask. I know that can pretty much mean anything, even beetles or something nasty. Kind of one of those "It's best not to think about it" things, except, well, you need to know. I hope the new diet works for you!!!
post #11 of 47
Quote:
Originally Posted by strange_wings View Post
I've had it by itself before, not made into other products. I gagged, the texture was awful.
Aw, that's too bad. I really like it. Well, perhaps you'll like it as pasta.
post #12 of 47
Quote:
Originally Posted by strange_wings View Post
I sort of suspected and was suspicious for a few years due to getting gallstones in my teens (actually probably closer to 12-13 years old) when I didn't eat that fatty of a diet, and was very much underweight then. In fact until the last two years I've always been underweight.. which can be a symptom of celiacs, too.

The reason I was getting so sick and not digesting food well is because of all the inflammation from it. And back to the ER visit when my heavily wheat gluten laden meal of pasta made me extremely sick - not a virus or even bacteria, but wheat that made me so ill.

If anyone else has had digestive issues from fairly young, gallstones with no risk factors, get tested for celiacs.

I'm dreading going through the cabinets to find something edible for the next couple of days, I think I'll be stuck to meat only.
HOw did the doctor diagnose the gluten intolerance. I hope you can get on a regulated diet and feel better.
post #13 of 47
Thread Starter 
Quote:
Originally Posted by DarkMavis View Post

As for "natural flavors", you might just want to call the company to ask. I know that can pretty much mean anything, even beetles or something nasty. Kind of one of those "It's best not to think about it" things, except, well, you need to know. I hope the new diet works for you!!!
I certainly hope not. Many beetles have a bitter taste (opinion of my reptiles and keepers odd enough to taste test insects). Though they'd certainly be gluten free… Usually it's how they sneak odd things in like gluten and lactose. I'll figure it out and I have an appointment with a dietition to cover the smaller things.
I didn't have time to dig around for a safe lunch, so I defaulted to one of the Ensure shakes in the fridge as I usually do when I have problems eating. I never noticed before that they are gluten free, though that explains why they settle ok.
post #14 of 47
Well i dont know anything about this at all, but i hope that you find some nice food to eat It would suck having that disease...
post #15 of 47
Thread Starter 
Quote:
Originally Posted by blueyedgirl5946 View Post
HOw did the doctor diagnose the gluten intolerance. I hope you can get on a regulated diet and feel better.
Endoscope biopsy of the duodenum (first part of the intestine just passed the stomach). The changes it cause were present. The other way is through a blood test, but they were down there poking around with the scope so the biopsy was easier. If one doesn't need a scope, go for the blood test.

What is important is that if anyone thinks they have it and wants an official diagosis of it. Keep eating wheat gluten, otherwise the tests will show that you don't have it. As far as GI disorders go, it's not too uncommon, but not everyone has it and the diet isn't needed for someone who doesn't have it. (In otherwords its not a fad cure all diet for other disorders)
post #16 of 47
One good thing is, you will probably start feeling a LOT better!

(I just did some reasearch on Tuesday after I woke up feeling really really bad from whatever I ate Monday night, and that was one of the possibilities...)
post #17 of 47
Sorry you can't eat whatever you want and life changes a bit from here but very glad you finally have a diagnosis that you can work with. My local grocery store has a section of foods that are gluten free, pretty nice range of products. Whole Foods I think has a whole aisle.
Amazon online has a good selection of gluten free foods.
There are gluten free blogs that can give you great snack and meal ideas.
post #18 of 47
That is actually quite good news - that you have something that is controllable by diet. And it is actually not too bad to follow anywhere - I have two friends here who have to eat gluten free, and they have been able to make all the adjustments necessary without spoiling their social lives or going hungry. There are many online sites to help, many with good recipes. I have made delicious chocolate cakes for them that others would never know were gluten free. ANd you can buy things like spelter flour and rice flour and pasta online and get it delivered to your door if the local shop can't supply. But all big supermarkets carry gluten free products these days. If you don't have one, get a bread machine - I make gluten free bread and rolls and cakes for my friends in mine.

It is a change of lifestyle, but I am sure you will manage it. You are strong and practical. All the very best for a swift recovery.
post #19 of 47
Quote:
Originally Posted by kluchetta View Post
There are a lot more gluten-free products out there these days! Even pasta!
That is one thing I love about my Krogers, its one of those huge ones that even sells furniture and what not, and their health food section is HUUUUGE w/ lots of gluten free choices amongst other things in there!

Side benefit is that the gluten free stuff tends to be the healthy ingredient stuff as well, so it kind of forces you to eat well.
post #20 of 47
Oh yes I was tested in my teen s... In my case not celiacs but a severe intolerance to gluten... You have a PM... Today it is a breeze to eat this way ,even restarants have gluten free section s and menus...
post #21 of 47
Oh wow, how weird! Gary and I were at the health food store Tuesday (fresh bread day) - and I was chatting with the owner, and mulling over trying us on a gluten free diet for a while... but as we chatted about the intolerance, it crossed my mind that this may be what's been bothering you... but then I let it go, because I was sure you'd have already been tested or gone gluten-free to see!

It'll be a PIA at first, but I'm sure you'll figure it out, and feel MUCH BETTER for it!!!!
post #22 of 47
Thread Starter 
Quote:
Originally Posted by LDG View Post
Oh wow, how weird! Gary and I were at the health food store Tuesday (fresh bread day) - and I was chatting with the owner, and mulling over trying us on a gluten free diet for a while... but as we chatted about the intolerance, it crossed my mind that this may be what's been bothering you... but then I let it go, because I was sure you'd have already been tested or gone gluten-free to see!
If you're considering it, get tested first. If you do have any gluten issues, go off it, then go back on for tests you can get very sick from it.

Not everyone needs this diet. Again, it's not a cure all for other issues. It's actually possible to have a placebo effect even if you don't need it, too.


As for being healthier. There's plenty of ways to still eat unhealthy foods that don't have any trace of wheat in them. Fats and sugar. I can't have much of the former, but eat far too much of the latter. (eating some chocolate, atm)

And again, my problems are largely going to be from living in a small rural town. Whole Foods? - If I wish to drive close to a 150miles. Resturants? Again, 120 miles or so. It's literally fast food and some small restaurants here that don't do that and/or can't be trusted to keep the wheat products away. (mostly Mexican food, an Italian restaurant, and another steak house place that has waiters/cooks that speak poor English and can't even understand "No Mustard")
There are plenty of gluten free products that aren't specially labeled as such, but no breads, mixes, cereals, or specialty items of the like at the grocery stores I have available. Shipping... is expensive and won't be an option for me.
post #23 of 47
Gary's been tested, but I thought it might help his IBD anyway... though I'm starting to develop a lot of symptoms that indicate a potential wheat intolerance, though none are digestive.
post #24 of 47
Thread Starter 
Quote:
Originally Posted by LDG View Post
Gary's been tested, but I thought it might help his IBD anyway... though I'm starting to develop a lot of symptoms that indicate a potential wheat intolerance, though none are digestive.
Get it checked out. If you don't have it you won't get better by going off of it, and you'll be giving up a lot of whole grain foods that actually are good for you. Btw, if someone in a store comes up and really starts on about stuff like this please remember they're salespeople. A good one will talk you into buying something you do not need and you won't even realize they're doing it because they seem so nice and helpful. (been there, done that to people )
Otherwise get some tests done, it may be something else entirely. Especially get your B vitamins and vitamin D checked along with a few others. Maybe you'll find an answer.

IBD is a whole 'nother ball park. Maybe work with a dietitian as well as his doctor?
post #25 of 47
There are gluten free cookbooks too!
post #26 of 47
Sorry to hear this, but glad that you have a diagnosis and can make some plans about feeling better.

I am lactose intolerant and not much more tolerant of soy. I have something called wide focal colitis.... so I have to be careful what and how much I eat.

When I doubt I just follow BRAT - but I know you cannot do that.
post #27 of 47
Working for a breadshop we make several GF products.
First both King Arthur and now Stonewall Kitchen have a line of GF products. Given their reputation for non GF bakery items I'm sure these are pretty good.

Our GF muffins are really good. I personally don't think there is much of a difference between those and the wheat ones. Same for the cookies.
The bread-well the texture is quite a bit different. Many customers to our store have tried the frozen bread items 1st and then try ours! Usually the texture can be more dry and crumbly.
But if you read the labels on GF products you will find that they have many more ingredients and are more calorie. Takes more ingredients to make them palatable.

If you can try to find GF bread items made without corn. Many people with wheat intolerance can also be intolerant to corn. We have had many people comment on this.
There are also people that are intolerant to yeast.

Actually a whole lot of food allergies out there. Never knew it before!
post #28 of 47
I just noticed Red Star gluten-free active dry yeast at one of our Stop and Shop supermarkets a couple of weeks ago. It's prominently displayed, they put it where the Fleischmann's active dry yeast used to be, so it's impossible to miss. I guess there must be a great deal of demand for this item.

And some hopefully helpful info
http://www.breadexperience.com/gluten-free-breads.html
post #29 of 47
Thread Starter 
Quote:
Originally Posted by GailC View Post
But if you read the labels on GF products you will find that they have many more ingredients and are more calorie. Takes more ingredients to make them palatable.
I don't believe I have a problem with corn, but then I don't eat that much of it.

I did remember that you've worked in bakeries and I'm sure you know a few tips that you may find me randomly asking you.
I didn't know that the premade items had more calories. This really won't be an issue for me, though, since I rarely meet what should be my daily caloric intake anyways (usually hit 1000 or 1200 at best ). A lot of premade stuff is just for my DH, really, as I quite a bit pickier.

One thing I realized last night is that I'll probably need to make my own salsa(among other things). Any suggestions for a nice high heat/drought resistant high yield rich flavored tomato? The romas my in-laws grew last year didn't do very well (nor the year before) so I don't believe they like this area. The early girls I grew went nuts, though.
And what the heck is the proper name for those little sweet peppers you see in stores now?

I do have some concern that there are people that this diet doesn't do any good for. Apparently that's linked to other bacterial growth problems.… (which I've had, hopefully that didn't set me up for more trouble).

ETA: I just realized that the shredded cheeses in my fridge (from a shopping trip at Sam's - I sometimes get to go every couple of months) are all gluten free. Maybe because they're large bags that are intended for restaurant use? I'll have to see what other bulk items they offer that are gluten free.
post #30 of 47
Quote:
Originally Posted by Violet View Post
I just noticed Red Star gluten-free active dry yeast at one of our Stop and Shop supermarkets a couple of weeks ago. It's prominently displayed, they put it where the Fleischmann's active dry yeast used to be, so it's impossible to miss. I guess there must be a great deal of demand for this item.
I've seen that, too. Several of my "healthy" cookbooks have gluten-free recipes. I'e never done much experimenting with gluten-free cooking.

Stonewall Kitchen is a little on the pricey side with some of their products, but they are good. King Arthur is the only brand of flours we use now, other than my semolina and oat flour which I buy at a natural foods store. I know that store also carries spelt flour as I've seen it.

that you'll be able to control this by your diet.
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