Celiac Disease.........

cheylink

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They finally diagnosed Eric with Celiac Disease. He has had so many symptoms over the years, but one would never know.....
Just wondering if anyone here knows anything or has had experience with Celiac Disease......
 

sharky

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Feel free to PM me .. I do not have Celiac thank you biospy way back when... But I do have gluten intolerance
 

MoochNNoodles

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I do know a girl who has it; but I really don't know anything about it. I know she has had a lot of health problems over the years and her kids all have to be tested for it.
Sorry I'm not more helpful.
 

starryeyedtiger

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I was placed on a Celiac friendly diet for almost a year a good while back. (They did test after test on me to try and figure out what was causing my GI issues....after much desperation, I finally just attempted a gluten free diet for a while to see if it would make a difference. While I wound up not having Celiac disease (thankfully), I was able to get a lot of good advice from several nutritionists, GI specialists, and other experts. I also became quite good at making glut. free recipes that didn't taste like cardboard
If you'd like help, please send me a message!


One of the best things I learned when on that celiac diet was how to keep a food journal. While I wound up NOT having Celiac disease, I still have a plethera of other food allergies, sensitivites, and GI issues going on, so it was good for me to document what I ate, my symptoms, etc for a while so that I could design a food lifestyle for myself that would not constantly make me ill. It's still a daily struggle on some things (I LOVE LOVE LOVE certain foods, but they do not love me back). Definitely encourage him to start a food journal.

Also, if you have a Whole Foods in your area, pay them a visit! They are THE best grocery store in my opinion for things like that. Yes, they can be a tiny bit pricy, but they label EVERYTHING. (especially glut. free items- that makes shopping soo much easier.) They also have well trained staff that will know how to advise you in cooking for a glut. free diet and the largest selection around for things like that.
(stay away from the pre-made, over priced glut. free bread though...get the glut. free mix and ingredients and make your own- it's absolutely deliscious and he will be soo relieved to have real homemade bread that tastes good!)

Also, look around online for support groups- there are some amazing ones. They can help with everything from recipes, to coping with day to day life for him. Good luck!
Sending lots of vibes his way!
 

rosiemac

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My nextdoor neighbour has it in her family, and now her 10 year old daughter has it.

She manages fine. Theres a huge selection now of gluten free foods available but their expensive, but as soon as Chloe was diagnosed with it, they had all the tinned and packet foods out so she could start to understand what she had to look for.
 

vampcow

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my best friend's mom had it, my ex boyfriend had it, one of my good friends has it. I came back with antibodies for it but I don't have it but was strongly suggested to follow the diet since I have an intolerance to gluten. If you need advice let me know. I bake and cook and stuff without gluten. It is a hard adjustment at first but it does get easier and I find i am not missing out on anything. (including pizza and bread...just don't get the frozen breads they have at the stores for gluten free its NASTY)

You can get tons of gluten free stuff...most health food stores, whole foods is great for it, Mrs. Green's is good too and so is Stop and Shop!

a great cookbook that explains how to mix your own flours for recipes so the baked goods and breads come out tasting like their flour counterpart is Gluten-free baking with the culinary institute of America.

I made the chocolate lava cakes for my family and none of them could tell it was gluten free!
 

nanner

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Oh, Chey - (sorry - I realize I called you Cheryl in the other thread....typing too fast) - it's so good that at least he's been diagnosed. There are a couple of people where I work that are living with Celiac disease. They're doing fine with regulating their diet.

It may seem like alot of work to him at first, but it sounds like there's some really good advice right here on this thread.

All the best to him!
 

catmom2wires

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So glad he was diagnosed. And consider yourself LUCKY that you two live in NYC---being gluten free will be considerably easier than in many other places.

My daughter was on a gluten free/casein (dairy) free diet for 3.5 years when she was a little girl. I live in rural Texas and it was HARD. I ended up ordering food over the net. Now it's better as gluten free is more readily available.

You may want to help him with the de-glutenizing (ha!) of his apt. Every bit of gluten will need to be removed (you can score some free food!) and every pot, pan, dish thoroughly washed along with every kitchen surface to make sure all traces of gluten is removed. Then restock with gluten free stuff and he'll be on his way!!!

Good luck! Hope he's feeling AMAZING very soon!

Cally
 

c1atsite

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Originally Posted by CatMom2Wires

and every pot, pan, dish thoroughly washed along with every kitchen surface to make sure all traces of gluten is removed. Then restock with gluten free stuff and he'll be on his way!!!

Good luck! Hope he's feeling AMAZING very soon!
Oh my goodness, I didn't realize celiac required all that
Good luck & vibes for your friend Eric chey
 

stephanietx

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I'm glad you finally got a diagnosis for Eric. At least you know now and can start working on dietary changes and lifestyle changes to improve his health. I have no experience with Celiac Disease, but this blog is owned by a lady who has a child with celiac disease and most of her recipes are gluten free.

http://crockpot365.blogspot.com/
 

pushylady

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I know a couple of people with it. While it is inconvenient at times, once you get used to avoiding certain ingredients and build a big list of what you are allowed, life becomes easier. It's much, much easier nowadays too as it's not an uncommon intolerance and there are loads of gluten free prepared foods out there, plus lots of manufacturers will label if their products contains gluten now. There are plenty of foods that don't contain gluten too but aren't specially labelled (and priced) as such. Learning to prepare your own meals helps a lot too. Is Eric handy in the kitchen? He does't have to start baking his own breads right away, but it would make his life easier to stockpile some meals in the freezer so he's always got something good on hand to eat.
My friend's health improved dramatically once they were diagnosed and started avoiding gluten. Everything improved for them, and having that improvement and control over her health far outweighed the hassle of having to educate herself about gluten.
 
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cheylink

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Thank you everyone for all your support and advice!

Originally Posted by StarryEyedTiGeR

I was placed on a Celiac friendly diet for almost a year a good while back. (They did test after test on me to try and figure out what was causing my GI issues....after much desperation, I finally just attempted a gluten free diet for a while to see if it would make a difference. While I wound up not having Celiac disease (thankfully), I was able to get a lot of good advice from several nutritionists, GI specialists, and other experts. I also became quite good at making glut. free recipes that didn't taste like cardboard
If you'd like help, please send me a message!


One of the best things I learned when on that celiac diet was how to keep a food journal. While I wound up NOT having Celiac disease, I still have a plethera of other food allergies, sensitivites, and GI issues going on, so it was good for me to document what I ate, my symptoms, etc for a while so that I could design a food lifestyle for myself that would not constantly make me ill. It's still a daily struggle on some things (I LOVE LOVE LOVE certain foods, but they do not love me back). Definitely encourage him to start a food journal.

Also, if you have a Whole Foods in your area, pay them a visit! They are THE best grocery store in my opinion for things like that. Yes, they can be a tiny bit pricy, but they label EVERYTHING. (especially glut. free items- that makes shopping soo much easier.) They also have well trained staff that will know how to advise you in cooking for a glut. free diet and the largest selection around for things like that.
(stay away from the pre-made, over priced glut. free bread though...get the glut. free mix and ingredients and make your own- it's absolutely deliscious and he will be soo relieved to have real homemade bread that tastes good!)

Also, look around online for support groups- there are some amazing ones. They can help with everything from recipes, to coping with day to day life for him. Good luck!
Sending lots of vibes his way!
If you have any yummy gluten free home cooking recipes, we would love to hear them! Luckily we have Trader Joe's here
we also have Whole Foods but they are extremely expensive
.

I love the baking your own glut. free bread, his roommate is a self proclaimed chef! He loves a new challenge, how to make gluten free baked goods that Eric loves is perfect!
The personal diary is a great idea... He didn't want to think he was as sick as he was, wouldn't listen to anyone, till he almost died!
 
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