Hi everyone,
I had my oncologist appt today. My blood counts have now "recovered" so my restrictions have been removed and I have been discharged from them and will now be followed by my neurologist. I can now eat raw veggies from restaurants (can you say salsa and guacamole?), go to the gym, take ibuprofen if I have pain (Tylenol is so useless!) and generally do as I like.
I discussed the fact that I still basically feel like poo. I also have lost another 3 pounds since last Wed's appt. They said that my tastebuds may take another 3-6 weeks to recover and to just keep trying to eat as much high calorie and protein rich food as I can. They also recommended using plastic utensils because metal ones can make the food taste bad to some people. I tried to eat Mexican food after my appt, but only got about 25% of it down. Frustrating.
In other news, I am having a new flare up of the disease I am trying to extinguish. I spent most of yesterday crying about it, as I only had "2 good weeks" during which I felt lousy otherwise and it just doesn't seem fair. However, after some more research, I learned that flare ups are very common, and I can now begin using some of my old treatments, and hopefully they will work better and gradually the myasthenia will fade with time. So, I am trying to be a brave soldier, and a patient one, and we will see what happens. Seems I could still use vibes....
Thanks for the support through all of this. It has really helped. I'm planning to start back at the gym in a few days, as it will be good to see my workout buds, even if I can't do much at first. I think getting into my "life routine" is the best plan now. The rest will happen in its own time.
Thanks again!!!!
Cally
I had my oncologist appt today. My blood counts have now "recovered" so my restrictions have been removed and I have been discharged from them and will now be followed by my neurologist. I can now eat raw veggies from restaurants (can you say salsa and guacamole?), go to the gym, take ibuprofen if I have pain (Tylenol is so useless!) and generally do as I like.
I discussed the fact that I still basically feel like poo. I also have lost another 3 pounds since last Wed's appt. They said that my tastebuds may take another 3-6 weeks to recover and to just keep trying to eat as much high calorie and protein rich food as I can. They also recommended using plastic utensils because metal ones can make the food taste bad to some people. I tried to eat Mexican food after my appt, but only got about 25% of it down. Frustrating.
In other news, I am having a new flare up of the disease I am trying to extinguish. I spent most of yesterday crying about it, as I only had "2 good weeks" during which I felt lousy otherwise and it just doesn't seem fair. However, after some more research, I learned that flare ups are very common, and I can now begin using some of my old treatments, and hopefully they will work better and gradually the myasthenia will fade with time. So, I am trying to be a brave soldier, and a patient one, and we will see what happens. Seems I could still use vibes....
Thanks for the support through all of this. It has really helped. I'm planning to start back at the gym in a few days, as it will be good to see my workout buds, even if I can't do much at first. I think getting into my "life routine" is the best plan now. The rest will happen in its own time.
Thanks again!!!!
Cally
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