I could use as many vibes as you can spare...

alicatjoy

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I hate that I haven't been around over the last couple of days. But, I've been so sick that I've been cooped up in my bedroom, under the covers, sleeping, and just generally shutting the world out. I didn't know what was wrong and no one believed me (my roommate didn't and my mother didn't -- they told me it was in my head). But, last night, my friend drove me to the ER because I called her in hysterics over the fact that I couldn't breathe and that I was terrified something horrible was going to happen to me. I'm still scared...

In retrospect, I guess I started feeling unwell earlier in the week. My roommate had a sinus infection and cold and so I thought I was just coming down with that, but other than a slight sore throat, I never got "sick." But, I still felt tired, worn out, and just not right. On Friday morning I noticed some slight wheezing, but it went away as quickly as it came on. I even called my doctor thinking it was possibly the start of pneumonia, but she wrote it off as just allergies (which I don't have usually). But, by Friday night I was having trouble breathing. I couldn't walk from one room to the next without getting winded and I was not even able to get up the steps. But, nonetheless, my roommate said I was creating it out of my head and my mom said I was anxious and the doctor still insisted allergies. Even once I went to the ER, the doctor's wrote it off. The triage nurse thought it was high blood pressure (which was high when I was there, but only because they took it on my wrist rather than on my upper arm) and the doctor told me I had acid reflux. His answer was a GI cocktail that numbed my lips all the way to my stomach, but did not help me feel better. But, since my heart rate was high and erratic, they did do other testing (after telling me I was just having an anxiety attack). And, as it turned out, it was a good thing they did run those tests.

My blood tests all came back okay, but my EKG was slightly off (I can't remember what they said about it) and, as I said, my heart rate was high and somewhat erratic. My oxygen levels were lower than they should have been and my respiration rate was a bit high. The doctor was sure it was anxiety, but the nurse believed me and pushed him to do a CT scan of my lungs and heart to ensure that there were no blood clots. And, there were no clots, but they did find a pericardial effusion which prompted them to do an echocardiogram which proved that I do have pericarditis.

Here is a website with info about pericarditis: http://my.clevelandclinic.org/heart/...icarditis.aspx.

At any rate, this is something I suffered with early last year. After blood tests, the general concensus was that it was due to the coxsackie virus. But, the fact that I have an auto-immune disorder (we're in the process of determining what disorder I'm dealing with) could also be the cause. I barely had symptoms last year, but I'm having a lot of them now. My heart occasionally feels like it's pounding out of my chest and I have a lot of shortness of breath. I'm uncomfortable, but not in pain. I'm also feeling weak and tired, but that could also be because I didn't sleep well last night. I just don't feel good and to top it off, I think I have a wisdom tooth coming in as my mouth and jaw is all inflamed on one side. I'm just cranky, tired, and very scared...

I will have to call my cardiologist tomorrow to schedule another echocardiogram and figure out what to do to help the situation, but, for now, I'm just dealing with it like I did last year -- by resting and taking NSAID pain relievers (Ibuprofin). I'm afraid, though. As most know, I have OCD and therefore tend to overreact. I know they released me and said I was okay to go home (but to come back and they'd keep me if I were to get worse), but I'm still scared that I may die or become seriously ill. I'm afraid that they misdiagnosed me and that I'll have a heart attack (as I do have a strong family history of heart disease). I know, intellectually, that everything aside from the effusion and pericarditis was normal, but it doesn't translate emotionally. It's hard to be young and have a lot of health issues, but it's my life. I usually handle it rather gracefully, but I'm not able to just yet. I'm angry, upset, and afraid right now. In time it will get better, but it's hard to be positive when all you feel is overwhelmed.

So, do you think it would be possible to spare some vibes for me? I could really use them...
 

otto

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and best wishes to you. You must be a very strong young woman to be able to cope with it all. I feel bad for you that you weren't taken seriously. That nurse was there to become your guardian angel it seems. I haven't looked at your link yet. but here's some more TCS
 

mystik spiral

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Aw, sweetie, lots of from me. I hope you feel better soon, and that things aren't as bad as they seem right now.

I have a heart murmur, and I am prone to panic attacks. I know what it's like to feel as if you are going to have a heart attack at any moment. I did have an echo-cardiogram last year and it wasn't too bad.
Thankfully, I have a doctor who I trust, and anytime I am too overwhelmed I have my doctor and a PA to talk me through things. I hope you have health care professionals that you love and trust, too.
 

valanhb

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My gosh, I am so sorry that no one seemed to believe you. I'm very glad that one nurse did, and went the extra mile to get the tests done to show what is going on. Once they know what is going on they know how to assess it and treat it, even if it is just to send you home to talk to your regular doctor or cardiologist. But like I said, once they know what is going on they can assess it, and since they had the scans and tests in front of them they would know if it were safe to send you home. Think of it this way - if there were any chance that you would have a life-threatening event (i.e. heart attack) in the time between when they saw you and when you could get in with your cardiologist they would have admitted you. It's their liability and their butts on the line if they sent you home and something did happen.

Lots of
for you right now, and in your quest to find answers about whatever AI disorder you have. I've got one too (MS), and I know how frustrating it is figuring anything out about what is going on in your body!
 

gailc

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Wow what an ordeal you had to got through to get the proper diagnosis. Thankfully there was someone who listened and got the correct procedures ordered.

Take it easy and I hope you are feeling better soon.
 

darkmavis

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Wow that sounds like a scary ordeal! Glad to hear you're doing a bit better now though. Extra bad since there's anxiety involved. I am glad you finally got some tests done and have at least some answers now. Best wishes for succesful diagnosis/treatment/recovery/remission/everything else good!!
 
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alicatjoy

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I'm not going to write much, so this will be short. But, I want to thank everyone for their kindness and support. I am truly grateful for each and every one of you here at TCS
.

I don't have much news to share as far as how I'm doing as I haven't spoken directly with a doctor as of yet. It seems that having no insurance makes even simple things take that much longer. I felt defeated today, but that will only cause me to come back stronger tomorrow. I know I can get in to see my regular doctors, but it will just take some additional effort on my part. And, unfortunately, I did not have that to give today. However, tomorrow's a new day and I know I can get things settled then.

As far as how I'm feeling, not much has changed. I'm very weak and have difficulty breathing as well as shortness of breath. It's not severe, but it is certainly enough to cause me to feel quite uncomfortable. And, in another thread I posted, I explained that some of that discomfort is made worse by anxiety as I have difficulty with memories of abuse relating to not being able to breathe. But, I am handling that as well as I can and am taking care of myself. My chest feels heavy and I have periods of time where my heart is pounding and racing, but I don't think it is any worse than it was a day ago. And, indeed, it's likely better as I now have answers about what is wrong.

The only bad thing is that I seem to have worsening jaw/mouth/tooth pain. I'm assuming it is due to my wisdom teeth erupting (I'm 27 and have been dealing with this for quite some time now), but this time it is different and I'm concerned that there is an impaction. My left jaw is very sore and I have a lot of inflammation of my gums and pain toward the back of my mouth. You can easily see where there are signs of my wisdom teeth trying to come in and, while I've had similar symptoms in the past, it's never been this severe or lasted as long (we're going on 4-5 days now). I know I need to see a dentist, but I don't have one and haven't been to one in years. I have never had a cavity and practice good oral hygiene, but have some issues in my past that could also be the culprit. I will be making some phone calls tomorrow, though. I know this isn't something I can wait on.

So, I'm just taking Ibuprofin and that seems to be helping both issues. I don't feel well and have been sleeping a lot, but I am alright so far as I can tell. If anything changes, I will head to the ER as that is what was recommended, but I'm not there yet. And, hopefully, I won't be anytime soon...

I'll write more tomorrow. I'm feeling anxious right now (which is partly my fault as I suffer from anxiety and partly caused by the pericarditis) so may be around for a bit, but I don't know what else to say tonight.

Thank you again for all the vibes and well wishes. If you can afford to, please keep them coming -- they are most appreciated
.
 
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