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Wish Me Luck *Sigh*

post #1 of 26
Thread Starter 
I have an appointment with my doctor in two hours. I cannot get the meds I need here in Canada, and I need to find out if there is some kind of acceptable alternative.

I have pernicious anemia and regular B-12 injections do not work; the only thing that helps me is a time-release B-12A (hydroxocobalamin). The manufacturer is Watson Labs in the U.S. I cannot find a place that will send it outside of the U.S. (Actually, there is a lab in China that produces it and would send it here but that is very scary to me but I will be discussing this option with my doctor if I have to.)

I have been suffering and am hoping I can have a solution before more permanent damage is done. *sigh*

Any good wishes are greatly appreciated!
post #2 of 26
Wow, that is tough. Wish I had some good words of wisdom or experience for you, but all I have is lots of and some very strong good luck vibes!

Hope you find a good solution soon!
post #3 of 26
Good luck! I hope you can find a way to get the meds you need.
post #4 of 26
Thread Starter 
Thank you both for the well wishes! They mean a lot to me.

I'm off to the doctor now... I hope I don't start crying during my appointment, I hate that!

Chin up, I've got my iPod and my water bottle...

I will post an update when I get back.
post #5 of 26
Best of luck at your appointment! I would be hesitant to take anything from China myself, just because all the latest troubles.
post #6 of 26
Good luck at the Doctors
post #7 of 26
Lots of prayers and vibes headed your way! I hope you're able to come up with a solution with your doctor so you can get the medication you need.
post #8 of 26
Good Luck.
I hope the doctor has a good and reasonable option for you.
post #9 of 26
DonĀ“t get nervous Kat!...

for you keep strong!...
keep us updated my friend!...
post #10 of 26
Good luck!!
post #11 of 26
I hope you get something that will help.
post #12 of 26
sublingual doesn't work for you, either, i'd assume? that's what i use since the portion of my intestine that absorbs b-12 is bypassed now...
adding my & that a solution is found!
post #13 of 26
Hope all goes well for you. I, too, am (severely anemic), but it is not the type you have.

BTW, I lost track of the post you posted about a few months ago, about getting up in the middle of the night, and craving orange juice. Is the anemia somehow related to this, or did you ever find out what was causing it?
post #14 of 26
for your appointment and for finding the medicine or a generic alternative.

I wouldn't order anything from China at this point.

Aren't there sites on-line where you could order it?
post #15 of 26
Yikes! I hope they can find something for you or work something out. I hope it all went ok for you there.
post #16 of 26
I hope the appointment went well today and you didn't cry during it (I hate doing that too... )
post #17 of 26
Thread Starter 
Thanks for the kind words!

There's not much to tell you. I got a prescription for the regular B-12, and I got the requisition to have a bunch of blood tests done in January. There aren't really any other options right now.

laureen227, no sublingual doesn't even help maintain.

MargeCat, I'm no longer craving orange juice, but I did go buy a pregnancy test after so many people mentioned that! I'm not pregnant, thank goodness, that would not be good on all kinds of levels. I told my doctor about it and we are going to test for insulin-resistance in January.

butzie, my doctor said not to order from China, either. We are going to see what my levels are in a couple of months and how I am feeling with the regular B-12. I searched on the internet; evidently the hydroxocobalamin is not approved in Canada so the U.S. companies won't send it here (except for China and that is kind of weird).

sarahp, I didn't cry.


I really appreciate all of you.
post #18 of 26
I hope that the appointment went well for you. Sending lots of that you find a viable solution.
post #19 of 26
i hope you feel better soon.

Quesiton why cant you get what you need in canada? or did i just miss that part?
post #20 of 26
Thread Starter 
It's not approved here. I found some stuff on the web that says Canada is doing testing and research on it but it's still not sold here.

Thank you both for the well-wishes.
post #21 of 26
Quote:
Originally Posted by SwampWitch View Post
It's not approved here. I found some stuff on the web that says Canada is doing testing and research on it but it's still not sold here.

Thank you both for the well-wishes.
seattle is not that far from you, i think.,
can you not just drive down there?

or could i send you some ?
post #22 of 26
Quote:
Originally Posted by theimp98 View Post
seattle is not that far from you, i think.,
can you not just drive down there?

or could i send you some ?


Hope you get it settled soon
post #23 of 26
Quote:
Originally Posted by SwampWitch View Post
It's not approved here. I found some stuff on the web that says Canada is doing testing and research on it but it's still not sold here.
Too bad you can't get into some study group.

I can't remember what drug it was, but on another forum I'm a member of there's a Australian member who had to jump through a few hoops to get a med that wasn't made or approved over there - she had to get her medicine from the US. There may be a way around it if you must have it, as in potentially life threatening.

Two month wait for blood tests? Considering what tests you need that seems like an awful long time to wait. Guess I'm spoiled from getting tests done soon and/or if I request them.
post #24 of 26
Quote:
Originally Posted by theimp98 View Post
...or could i send you some ?
That's what I was thinking -- can't one of us get it for you and mail it up there? You know you have lots of willing friends here...
post #25 of 26
Thread Starter 
Good news, everyone! The regular B-12 has taken away the hurt-ache in my hands and feet and I am now able to hold a cup of coffee for longer than two minutes before having to rest my hand.

Whether it helps "fix" my red blood cells, we will see in January when I have the tests done. But I am encouraged!

Bruce, Sharky, Carol, and Sarah: Your offer to help has touched me very deeply. I don't really have the words... Your kindness will not be forgotten.

(We'll see in January if this B-12 is doing the job or not. I'd also need to find out it's even possible to do that.)



Quote:
Originally Posted by theimp98 View Post
seattle is not that far from you, i think.,
can you not just drive down there?

or could i send you some ?
There's no bridge, so to get to Seattle is a minimum of 4 hours (realistically about 6 hours) by ferry, if you include waits and the drive, and it's not cheap but if we had to, that is an option.

I just don't know if a pharmacy would fill a prescription from a foreign doctor, I'll have to look into that.


Quote:
Originally Posted by sharky View Post


Hope you get it settled soon
Quote:
Originally Posted by strange_wings View Post
Too bad you can't get into some study group.

I can't remember what drug it was, but on another forum I'm a member of there's a Australian member who had to jump through a few hoops to get a med that wasn't made or approved over there - she had to get her medicine from the US. There may be a way around it if you must have it, as in potentially life threatening.

Two month wait for blood tests? Considering what tests you need that seems like an awful long time to wait. Guess I'm spoiled from getting tests done soon and/or if I request them.
I was in a study group in Austin 25 years ago and that's how my anemia was diagnosed, so I believe in study groups!

The reason we are waiting two months to test is because it takes that long for the B-12 to work if it is going to work.


Quote:
Originally Posted by CarolPetunia View Post
That's what I was thinking -- can't one of us get it for you and mail it up there? You know you have lots of willing friends here...


Thank you everyone for the kind words and well-wishes!


p.s. My physiotherapist yesterday said that my back was in spams and I was instructed to rest and keep it warm the rest of the day. I felt something going on back there but with all the other pain I didn't really notice very much, lol. But that's a subject for another thread!
post #26 of 26
I'm glad to hear something has helped! I hope it keeps helping too!!
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