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Anyone got fibromyalgia

post #1 of 14
Thread Starter 
I've just been offically diagnosed... I'm hopeing someone here can give me some insite to how this is going to effect the rest of my life.... cuz I sure know how painful it is now!
post #2 of 14
Sorry, i don't have it or really know too much about it. I hope someone comes along that can give you a little help though! Have you tried researching some reputable medical websites/forums for information?
post #3 of 14
Thread Starter 
Doing that now... when I said i "just got the diagnosis" I mean with in the last 1/2 hr, lol
post #4 of 14
Thread Starter 
and THANK YOU! :hug:
post #5 of 14
Quote:
Originally Posted by sillyitiliangrl View Post
and THANK YOU! :hug:
No problem I hope you find the help you need for it!!!

I looked up a few links for you:

http://en.wikipedia.org/wiki/Fibromyalgia
http://www.mayoclinic.com/health/fibromyalgia/DS00079
http://www.nlm.nih.gov/medlineplus/fibromyalgia.html
http://www.medicinenet.com/fibromyalgia/article.htm
http://fmnetnews.com/basics-symptoms.php
http://www.fibronol.com/

I was able to find a few forums/ groups on Fibromyalgia -maybe they'll have some support groups that will help!
http://efibro.com/forums/index.php
http://www.fibromyalgia-support.org/forum/
post #6 of 14
I was diagnoised about 6 yrs ago ... I learned to deal with it and when things are really bad I stay home ... PM me and I will give details
post #7 of 14
My mom has fybromyalgia. It's hard to say how the fybromyalgia alone effects her, because she also has Epstine Barr (chronic mononucleosis), lupus, osteoarthritis, and three ruptured disks in her spine, along with pretty severe bone spurs in her hip and back.
My neighbor/family friend has fybromyalgia. At her worst she gets bad muscle aches, has difficulty getting in and out of the car and the shower, etc. With treatment, though, she's improved a great deal. She lost weight, which made everything easier on her body (though I have no idea if that is an issue with you), she now takes walks and is living a much more comfortable life. There will be times where it's bad but my neighbor has overcome a lot and sometimes her life seems like she doesn't even have it.

I know how hard getting a diagnosis like that can be.
post #8 of 14
I have had it for 17 years, some days are better than other, I make sure I get a lot of sleep. Dh knows if the laundry or dishes aren't done, it's one of those days. I find lately there are less bad days.
post #9 of 14
Thread Starter 
Quote:
Originally Posted by Mollysmom View Post
because she also has Epstine Barr (chronic mononucleosis),
I actually have Epstine Barr too...

So far the diagnosis sin't realy bothering me, at least I know I'm not immagining it and that there is something that can make me feel like a normal person!
post #10 of 14
Thread Starter 
Quote:
Originally Posted by sharky View Post
I was diagnoised about 6 yrs ago ... I learned to deal with it and when things are really bad I stay home ... PM me and I will give details
Thanks Sharky, will do!
post #11 of 14
Thread Starter 
Quote:
Originally Posted by StarryEyedTiGeR View Post
Your so sweet!!! Thanks so much for all the links, I'll check them out right now
post #12 of 14
I have and there isnt a day without pain.
Would you like to join this Group.
http://groups.msn.com/FibroSerenityGarden
They are really nice and help alot.
Just Say SnowAngelKitty sent you.
Its my name over there.
post #13 of 14
Thread Starter 
Quote:
Originally Posted by mews2much View Post
I have and there isnt a day without pain.
Would you like to join this Group.
http://groups.msn.com/FibroSerenityGarden
They are really nice and help alot.
Just Say SnowAngelKitty sent you.
Its my name over there.
Thanks! I'm trying to sign up right now!
post #14 of 14
Your Welcome,
She got your App and will write you.
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