There is one website which has been running since 2001, where I'm sure you will find all kinds of information...it's here
Many people who find themselves faced with a chronic condition like this find great comfort and practical help available from other pet parents who are already dealing with the same thing. You might want to consider joining them online and just reading the back-and-forths...have a "test-drive", so to speak, and see if it might be helpful. Then, if or when you're comfortable, you could pose your questions to the group. I've personally learned very much from another such specialized group.
There is one large group here
, and a smaller one here
which is an offshoot of the website I gave you.