Is there still hope left or should I just give up?

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pat

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Honestly, I would not wait. I would speak with the nurse who comes to take your mom in for the biopsy - or ask to speak to the person who will be responsible for her care during the biopsy and explain what happened in the colon biopsy, that you expect them to be prepared for her needing to go and that she is NOT to be yelled at or spoken to in any reprimanding fashion, nor to be left dirty.

I would go ahead and file a complaint re how she was handled during the colon biopsy...that violates a patient's bill of rights to say the very least.

I am so sorry that happened. I am glad there are improvements, hope to hear of more, and sending
 

carolpetunia

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Originally Posted by Pat & Alix

Honestly, I would not wait. I would speak with the nurse who comes to take your mom in for the biopsy - or ask to speak to the person who will be responsible for her care during the biopsy and explain what happened in the colon biopsy, that you expect them to be prepared for her needing to go and that she is NOT to be yelled at or spoken to in any reprimanding fashion, nor to be left dirty.

I would go ahead and file a complaint re how she was handled during the colon biopsy...that violates a patient's bill of rights to say the very least.

I am so sorry that happened. I am glad there are improvements, hope to hear of more, and sending
Absolutely! There is no excuse for treating her that way! And in combination with some other things you've mentioned, it gives me a very poor impression of this hospital. Oh, I wish you could bring her down to Baylor... but whatever you do, you should file a complaint about this immediately. Maybe you can help save some other patient from being mistreated that way.

I'll be sending light and vibes to help her through the biopsy -- and for good news in the results.
 

kittymonsters

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coming her way.

It sounds like she is making improvement each day.

I agree with Pat and Carol. file a complaint. There is no excuse for treatment like that.
 
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duchess15

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Originally Posted by CarolPetunia

Absolutely! There is no excuse for treating her that way! And in combination with some other things you've mentioned, it gives me a very poor impression of this hospital. Oh, I wish you could bring her down to Baylor... but whatever you do, you should file a complaint about this immediately. Maybe you can help save some other patient from being mistreated that way.

I'll be sending light and vibes to help her through the biopsy -- and for good news in the results.
I will be going down with her when they take her for her biopsy. I will tell them that I do not want a repeat of yesterday. The doctor I talked to today told me I could talk to patient advocacy which I will.

I will be waiting for her when she is done also. It doesn't help her nerves if she has already had a bad experience and the same doctor is going to do the biopsy.

However, we will try to get her to go before she goes down. She usually does well for a few hours afterwards. I'm sure that will make her feel better knowing she has already gone. She is also not getting anything after midnight tonight so that should help cut down on her going also.
 

lillekat

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Definitely file that complaint!!
That is utterly disgraceful! How could they possibly let your mum sit in that condition and reprimand her for something that is of no fault of her own?! And to leave her in that condition is so wrong on so many levels. A hospital is supposed to be a place of caring - your mum's experience was just indescribably horrible.
BIG vibes that the second biopsy will be - if not pleasant - more comfortable and the doctor will be much better than the last.
 

sibohan2005

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Originally Posted by LilleKat

Definitely file that complaint!!
That is utterly disgraceful! How could they possibly let your mum sit in that condition and reprimand her for something that is of no fault of her own?! And to leave her in that condition is so wrong on so many levels. A hospital is supposed to be a place of caring - your mum's experience was just indescribably horrible.
BIG vibes that the second biopsy will be - if not pleasant - more comfortable and the doctor will be much better than the last.

The hospital is not treating her with the right attitude, everyone deserves some respect and just becasue they are busy does not give them the right to ignore her. I hope she gets some satisfaction from the tests they are running today and your family finally finds out what is going on. I can't tell you how concerned I have been for you. All my best
 
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duchess15

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I just came home after spending 12 hours at the hospital. This is the second time I have done so and I think I'm going to feel the effects within the next few days. I'm still holding up pretty well.

They were late giving her plasma, but they did give it to her. We got her to the bathroom just before she was taken down. While we were down in the prep room, I think my mom got close to crying. I have never seen her cry in my life and it was hard for me not to, but I knew I couldn't in front of her. I told her many times that she would be ok, that I would be waiting and that I would see her when she was done. She was so scared and I would have been also if it had been me.

It took them two hours and I didn't get to talk to the doctor afterwards. She was in SO much pain that I hurt for her. She is one tough lady and I don't know how she is doing it. When they were trying to move her back to her hospital bed, one of the helpers accidently bumped her site where the needle was and that made her cry out in pain.

She said that the procedure hurt so bad. I can't imagine what she went through. I kept telling her she did a good job and that it was ok. I told her that it would hurt for a while. They did give her a little bit of pain meds. She did not have to go to the bathroom the whole time so I know that made her feel better.

Three doctors came by and said her levels were still going down and that things were looking good. The results from the liver biopsy should be out by monday or tuesday so they should have a better idea of what condition her liver is in and if it will be able to regenerate and heal.

She did smile a few times tonight so that was a good sign. They are also feeding her more through the tube so I hope her nutrition is getting better. She also said her legs are not hurting that much which is such an improvement that I can't tell you for how long she was in pain.

I just hope she continues to improve. I want her to be as healthy as she can get and just be able to get around again. They said she would be in the hospital a couple of weeks and will need PT to help her start walking again.

Please keep sending those vibes that the levels will keep dropping and hopefully go back to normal. I hope her liver is able to heal. I hope the pain meds won't elevate the levels too much tomorrow when they draw blood.

Thanks again for all the vibes!
 

carolpetunia

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I will be hoping and praying that the pain eases and her liver can recover... and I understand how hard it is to watch a beloved parent suffer like this... I know this is taking an awful toll on all of you. Many, many beams of healing light flowing to your mom...
 
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duchess15

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When I arrived this morning she was having a hard time breathing and having chest pain. They got the Dr. Rapid team in to help get her blood pressure and heart rate down. She was on 100% oxygen for most of the day.

They took an x-ray and thought it that the fluid was building up in her chest from the biopsy. They took another x-ray around 3 and that's when it turned bad.

She was having a hard time breathing again and chest pain and her blood pressure and heartbeat shot up.

They had an open room in the ICU, put her on a respirator and her vitals are better than they were up in the room. I am so afraid she will not pull through. She has been through so much and it just isn't FAIR!


They still have to figure out why she is building up so much fluid. At this point, I don't have much hope left to hold on to. I'm trying to hold on, but prepare for the worst if it is to come. I just don't know what I will do without her.


If you can spare anything, please, send some vibes, I don't know what to do anymore.
 

kluchetta

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Well, she's getting great care, and she's mostly in the ICU because they have an extra bed? Lots of prayers and vibes....
 
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duchess15

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She is in the ICU now because she is under respiratory distress. I just came home for about half an hour to change, pick up some extra clothes, and check on the cats. I am going back as soon as I have everything together. I'll try to send you an update tomorrow.
 

pat

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Sending for you and your family. I hope they find the cause, and resolve it...your Mom needs a break here.
 

theimp98

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Originally Posted by Duchess15

It's a possibility that she could die and I'm not ready for her to! If I could trade places I would! I just don't know what I will do if she does. All I know is that time is running out.

Is there any hope left when things looks so slim?
We are never ready to lose a loved one.
I know i felt the same several years ago when my mother had cancer.

there is always hope, i pray that your mom gets well
 

carolpetunia

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Oh honey, we're with you in spirit, Mom and me both -- thank goodness she's in ICU, that makes a huge difference in the quality of care. Wrapping her in light...
 
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