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if you can spare a prayer

post #1 of 24
Thread Starter 
I have a 21 year old sister who has Muscular Dystrophy. She has been rapidly declining. She lives in a nursing home. Today she is having surgery to place a feeding tube. Surgery is VERY risky for her because she does not do well under anestesia. It also takes a lot out of her. Please pray that the surgery goes well.
After she recovers from surgery they are going to call in hospice.

I hate this disease. My sister is a sweet and caring and intelligent person, she also has great faith. This is so unfair, she knows exactly what is happening to her body. Sometimes I think that having a disease that affects your cognition would almost be kinder (please forgive me, no offense meant). She has been a best friend to me and this all really sucks.

This is part of the reason we are moving, to be closer to her in the short time we can. Right now we live 6 hours away and we are moving to a city 1 hour away.

Anyway, thank you for your prayers.
post #2 of 24
Hoping the surgery goes well for her. Best wishes for you and your sister and family.
post #3 of 24
Oh how devastating...many prayers for your sister
post #4 of 24
No offense taken -- both kinds of illness are cruel and heartbreaking, and I'm so sorry your sister is among those suffering. My thoughts are with her.
post #5 of 24
I hope it all goes smoothly. What a horrible thing to have to deal with. She's lucky to have loving family to support her.
post #6 of 24
Many for your sister, and some for you as well!

As a Harley rider, I work to raise money for MDA every year - it's a cause that is near and dear to many a biker's heart.

I wish your sister and your family the very best!

post #7 of 24
Many For your sweet sister, you & your family
Your sister will be in our thoughts & prayers Tons of Best Wishes!
post #8 of 24
I will keep her in my prayers. I hope the surgery goes well.
post #9 of 24
Oh I am so sorry. Prayers being said for her and your family.
post #10 of 24
Oh my goodness that makes me want to cry! I hope things go well for her and she is in the least amount of pain possible. I'm so sorry for both you and your family.

to all of you.
post #11 of 24
Many prayers being sent to your sister.
post #12 of 24
Sending lots of vibes for her and for your family.
post #13 of 24
Oh no!! Very heartbreaking! I am so sorry.

that her surgery goes well!!! I will keep her in my thoughts and prayers!!
post #14 of 24
I hope everything goes well for her.
post #15 of 24
Thread Starter 
thank you for all your support.
I am so scared and worried! I have been on pins and needles all morning!
My mom just called and said that there was a delay due to a lab error. They just administered the anestisia 20 minutes ago. The doctor told my mom a half an hour for surgery and then up to 2 hours of close monitoring as she comes out of it.
More waiting.
post #16 of 24
Sending many vibes for her that everything goes smoothly for the surgery

It must be hard to see your sister in that way
post #17 of 24
Prayers for her.
post #18 of 24
Thread Starter 
It is. It is very heartbreaking. I was 6 when she was born and as we grew we became friends and planned on living next to each other as adults and all that. It has been so awful to watch her loose one thing after another. She was lucky enough to have her own apartment for less than a year (with cartakers that came multiple times a day). Then she lost that, she needed too much care (and 24 hour care). Then she got weaker and weaker. Then she is pretty much confined to her power wheelchair. And today the way she eats is forever changing.
This world is really not fair! Why do I have the nice life I have? It is not fair.
post #19 of 24
Thread Starter 
My sister is out of surgery and called me herself. It was such a relief to hear her voice that I cried!
post #20 of 24
Oh my. I'm so sorry.

Love and luck, coming your way.

Glad to hear she came out alright, though. I hope everything continues to go well.
post #21 of 24
Will do. So sorry to hear your story. You're right - it isn't fair. Dealing with this kinda stuff just hyjacks your life. Hope everything goes okay with the surgery.
Hang on...
post #22 of 24
Sending more vibes for your sister.
post #23 of 24
I am so sorry to hear about your sister. My thoughts and prayers are with you and your family. I understand wanting to move closer to her. I moved back to my Grandparents home after my Grandma was diagnosed with Alzheimer's. I spent 5 years caring for her and my Grandpa. My Grandma died in January of this year. I was so grateful that I was able to spend time with her and able to care for her. Good luck on your move because I understand wanting to spend as much time with someone who doesn't have much time left.
post #24 of 24
sending loving vibes to your sister, and to you
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