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Fibromyalgia

post #1 of 15
Thread Starter 
Hello, Any one else suffer from Fibromyalgia and all that goes along with it? I finally had a name put to my problems about 7 or 8 years ago but I have had it since I was about 9 years old.
post #2 of 15
I was diagnosed 10 years ago, I have had symtoms as long as I can remember.
post #3 of 15
I had a lot of students with that at my last job. It's manifests itself differently in each person it seems. No fun.
post #4 of 15
Yep, I was only diagnosed with it about 4 years ago but have had it since about age 7.
post #5 of 15
I may have it, but I have never been tested. What is it?
post #6 of 15
Thread Starter 
It hit me shortly after I watched something happen that traumatized me real bad when I was about 8 years old. The fibro is bad enough but my main problem most of my life has been clinical depression. It took many years to finally find a med that really helps me, I am far from "normal" but the med keeps me out of the hospital under suicide watch like I was 1 or 2 times a year for a few years. I am also bipolar, suffer from PTSD {post traumatic stress disorder}, bad IBS, very low self esteem, and I can't handle stress very well, my mind gets over loaded real easy and almost shuts down, I can sometimes get to the point where I get tunnel vision and I just sit and shake. I have problems sleeping at normal times, as in sleep at night and be up all day, its like my internal clock is all messed up.

I was amazed when I was told that allot of this stuff is part of having fibro. It took till I was in my early 40s to figure out all this stuff started way back when I was so traumatized as a little kid. I won't go into all the details but what happened was I saw a 12 year old boy fall into a huge pit and fell 100 feet and was killed. So this one day when I was 8 years old pretty much messed up the rest of my life so far, I couldn't handle school and quit in high school, I am a recovering alcoholic, I put myself into treatment in 1988, {been sober ever since}, could not hold a decent job for any length of time. I have been on disability for about 9 years now.

Probably more than most of you want to know about me and I am not sure why I even brought it up. Probably because I have been hurting so bad the last few days because I have been over doing it working around the house and the garage trying to get things done before it gets to cold here to work outside.
post #7 of 15
Welcome to the club... I was diagnoised about five yrs ago ...
post #8 of 15
Oh, gosh, didn't you get any kind of therapy after you witnessed that? Sending good thoughts and prayers; I hope you get some relief.
post #9 of 15
Aww Tom How scary to have witnessed that. I think anyone would be affected by that.

I thought Fibromyalgia was when everything hurts..like your skin can't even be touched by anything. I'm sure I am totally wrong, but thats what one of my clients told me once
post #10 of 15
althou I have had symtoms all of my life, it got really bad when I came down with a rare respiratory illness, my symtoms, are severe muscle cramps, constant acheing, insomnea, restless legs, fatigue (somedays I can hardly get out of bed) I can tolerate cold, or heat. I am very lucky I don't have depression, most people do, I find the hardest thing is to keep active, it is hard to go for a walk, when you know how much it is going to hurt.
post #11 of 15
Quote:
Originally Posted by Tom W View Post
It hit me shortly after I watched something happen that traumatized me real bad when I was about 8 years old. The fibro is bad enough but my main problem most of my life has been clinical depression. It took many years to finally find a med that really helps me, I am far from "normal" but the med keeps me out of the hospital under suicide watch like I was 1 or 2 times a year for a few years. I am also bipolar, suffer from PTSD {post traumatic stress disorder}, bad IBS, very low self esteem, and I can't handle stress very well, my mind gets over loaded real easy and almost shuts down, I can sometimes get to the point where I get tunnel vision and I just sit and shake. I have problems sleeping at normal times, as in sleep at night and be up all day, its like my internal clock is all messed up.

I was amazed when I was told that allot of this stuff is part of having fibro. It took till I was in my early 40s to figure out all this stuff started way back when I was so traumatized as a little kid. I won't go into all the details but what happened was I saw a 12 year old boy fall into a huge pit and fell 100 feet and was killed. So this one day when I was 8 years old pretty much messed up the rest of my life so far, I couldn't handle school and quit in high school, I am a recovering alcoholic, I put myself into treatment in 1988, {been sober ever since}, could not hold a decent job for any length of time. I have been on disability for about 9 years now.

Probably more than most of you want to know about me and I am not sure why I even brought it up. Probably because I have been hurting so bad the last few days because I have been over doing it working around the house and the garage trying to get things done before it gets to cold here to work outside.
I am sorry you are hurting so bad right now,
sometimes a hot bath helps me, but i know how you feel there is so much to do, and so little energy to do it. I hope you find some relief soon
post #12 of 15
Quote:
Originally Posted by Tom W View Post
Probably more than most of you want to know about me and I am not sure why I even brought it up. Probably because I have been hurting so bad the last few days because I have been over doing it working around the house and the garage trying to get things done before it gets to cold here to work outside.
Wow, I had no clue that some of those things were part of Fibro. What a horrible trauma to go through at such a young age. I am so sorry.
From age 7 till about 21 I had migraines, got sick with just the slightest exertion (basically what other kids could keep up with , I could not), extreme fatigue and other things. Then after the birth of my first child I had a horrible back injury (the major trauma that brought the Fibro. completely out). After that the other symptoms of wide spread pain, extreme exhaustion, heightened sensitivity, difficulty concentrating, hard time sleeping and so on came. I went to several Dr's trying to figure out what was wrong. I gave up for several years and just tried to live with it. Finally found a Dr that diagnosed me and I started going to a fibro. clinic. It helped and with lots of blood tests also found out that I have chronic Epstein Barr Syndrome as well as being slightly anemic.
I am sorry you have had to deal with those things all your life.
post #13 of 15
I'm so sorry Tom. I was recently referred to a rheumatologist for possible autoimmune disease and he mentioned my symptoms sound a lot like fibromyalgia. What is really strange is that my symptoms didn't really become apparent until I quit smoking about a year ago, after smoking for many years. All of a sudden my body felt like it had turned on me and belonged to someone else. Allergies and hives first then extreme fatigue, muscle and joint pain, IBS, depression/anxiety, Reynauds Phenomonon. My senses of touch, smell and taste were affected as well. I've decided on my own that my body is reacting to the lack of "junk" it was fed through cigarettes.
post #14 of 15
Quote:
Originally Posted by Crt View Post
I'm so sorry Tom. I was recently referred to a rheumatologist for possible autoimmune disease and he mentioned my symptoms sound a lot like fibromyalgia. What is really strange is that my symptoms didn't really become apparent until I quit smoking about a year ago, after smoking for many years. All of a sudden my body felt like it had turned on me and belonged to someone else. Allergies and hives first then extreme fatigue, muscle and joint pain, IBS, depression/anxiety, Reynauds Phenomonon. My senses of touch, smell and taste were affected as well. I've decided on my own that my body is reacting to the lack of "junk" it was fed through cigarettes.

That's so weird mine started when I quit cigs and got worse when I went on the BC Depo Provera. I'm just waiting on my insurance to come through with my new job to get things properly diagnosed.
post #15 of 15
Thread Starter 
I went through allot of therapy a few years ago. I did allot to put closer on seeing the boy die. I never told anyone I saw it happen until I was 40 years old. What happened was I had buried it so far down in my mind I almost forgot about it. Then a few years ago I had 7 ECT treatments for depression that didn't help the depression much but it brought out all this old stuff like it happened a week ago. So that is finally when I had to deal with it.

The ECT's also brought back memory's of being sexually abused by a baby sitter when I was real young, before the boy dying in the pit, But I said something to my mom about it right after it happened, but I don't think that did much for my mental health either.

My mom was just stunned when I told her the whole story. I guess I never said anything when I was a kid because I was afraid I would be blamed for him falling.
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