Good thoughts and prayers coming your way from Illinois!
I hope that everthing turns out ok for you and Isaac and baby Ron. Hopefully you will be able to find a wonderful doctor that can cure this disease.
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Please this is concerning ANNE all members read!
- Thread starter hissy
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Hugs, hopes, positive thoughts, and prayers coming your way, all the way from the UK !!!
Peace, Love, and Happiness, Always
Sonia
Peace, Love, and Happiness, Always
Sonia
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Issac went to the doctors and is scheduled to have a biopsy performed on Thursday of next week. Anne says thanks to the Internet, her and Issac now know more about this disease then the doctors in her country! The problem is, the drug that they need to get Issac better is not available in Israel, so they need to reach out to two places and talk to the doctors who are Wilson Experts and get this drug for Issac. The drug is costly $300.00 a month! There is a drug similiar to it in her country, but the side effects are the worse, so it is no longer the treatment of choice, which is why Issac has not been treated with it before. Apparently, he has been manifesting symptoms since he was 14 years old! So the doctor was reluctant to prescribe it until he was 100% sure it was Wilson's Disease. Which, he is now convinced it is, and the biopsy will confirm this diagnosis.
Then Anne will need to use FedEx and get the medicine for her husband and get him started on it quickly. She is also going to contact online prescription sites and find out if they can help her get the drug quickly and cheaper. She is going to write two places and hopefully hook up with doctors there Mt. Sinai and Michigan University appear to be the two leaders in this disease.
That's what I know, and I also know that if she could, she would surf in here and thank all of you for your prayers and good thoughts!
Also,on a side note she is getting ready to FedEx Cat Fancy tomorrow with photos of the cats at the shelter. She has been emailed interviewed for the article and The Phoenix Fund now has $546.00 donated towards the cats of Israel. So thanks to all of you from her!
She sends her best and will try and check in later if she can-
Then Anne will need to use FedEx and get the medicine for her husband and get him started on it quickly. She is also going to contact online prescription sites and find out if they can help her get the drug quickly and cheaper. She is going to write two places and hopefully hook up with doctors there Mt. Sinai and Michigan University appear to be the two leaders in this disease.
That's what I know, and I also know that if she could, she would surf in here and thank all of you for your prayers and good thoughts!
Also,on a side note she is getting ready to FedEx Cat Fancy tomorrow with photos of the cats at the shelter. She has been emailed interviewed for the article and The Phoenix Fund now has $546.00 donated towards the cats of Israel. So thanks to all of you from her!
She sends her best and will try and check in later if she can-
Hissy, thanks so much for keeping us posted on this!!!! I hope and pray that they can find a way to get the medicine he needs at a lower cost!!!! I am also glad to hear about Cat Fancy and the money that has been raised! Anne and her family will continue to be in my prayers. Keep us posted.
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bumping
My thoughts are with Anne and her family.
I think many people take it for granted to be healthy, in a non-war torn country, and have medical care and drugs available at anytime.
Of course my most positive thoughts go out to Anne and family. Thank goodness for the internet and the info and resources that are now available to her.
Keep it positive and take it one day at a time!
Of course my most positive thoughts go out to Anne and family. Thank goodness for the internet and the info and resources that are now available to her.
Keep it positive and take it one day at a time!
Anne - you and your family remain in our prayers!!!!!!
Positive healthy thoughts flooding to Anne and Isaac.
Thank you so much everyone for your prayers and good wishes! And than you Mary Anne for posting this for me.
I'm afraid I have little time now - I don't have any time to do any work. When I'm not with baby Ron, I'm working with hubby of getting medical opinions and trying to work out a way in which to get those medicines. The main obstacle right now is the drug import regulations over here
I am touched by you all! Thank you!
I'm afraid I have little time now - I don't have any time to do any work. When I'm not with baby Ron, I'm working with hubby of getting medical opinions and trying to work out a way in which to get those medicines. The main obstacle right now is the drug import regulations over here
I am touched by you all! Thank you!
Anne, I just read all that you are going through. I am so sorry. I want you and your husband to know that you're in my thoughts and prayers. God loves us all, and I am sure He is looking down on you both and surrounding you with love and protection. I sure hope that everything works out and you are able to get the medicine that your husband needs. We love and care for you so much at this wonderful site. You have given us countless hours of joy and hope in our times of need, and I hope that we can reign down upon you all the love and support you need now when you need it the most. May God be with you.
My thoughts and prayers are for Anne and her family.
Hissy - thank you for keeping us updated. I just saw this thread.
Anne -
i am so sorry to hear about Isaac's illness. I will keep you in my prayers also. Please let us know if there is anything we can do to help!
Anne -
i am so sorry to hear about Isaac's illness. I will keep you in my prayers also. Please let us know if there is anything we can do to help!
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Quick update:
They have found a doctor (the leading specialist) in this field in the United States that will do email consultations with Issac and not charge him! All he asks is that a donation be made to the Wilson Foundation in lieu of payment. He also gave Anne a couple names of doctors in her country well-versed in this disease. Issac is scheduled for his biopsy on the 23rd of Jan. The only drawback is the results won't be back for 2-3 months.
They have found a doctor (the leading specialist) in this field in the United States that will do email consultations with Issac and not charge him! All he asks is that a donation be made to the Wilson Foundation in lieu of payment. He also gave Anne a couple names of doctors in her country well-versed in this disease. Issac is scheduled for his biopsy on the 23rd of Jan. The only drawback is the results won't be back for 2-3 months.
Glad they found a doctor, but the wait of 2-3 months? Ick!
