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Please this is concerning ANNE all members read!

post #1 of 70
Thread Starter 
Most of you do not know much about this, so let me preface this by saying that Anne's husband has been ill for some time. Anne has been taking him from doctor to doctor trying to get answers, and no one seemed to know what was wrong until yesterday.

Issac's symptoms are fatigue, an enlarged and painful liver and weakness. He will be watching Ron for Anne so she can get some work done, and he will fall asleep without wanting to. Issac was diagnosed yesterday with Wilsons Disease.

Wilsons Disease is when the body has to much copper in it and the liver starts to malfunction. It is a chronic hepatitis and if not caught in the early stages can lead to severe neuroligical problems including slurring of speech and the inability to walk. It is a most serious issue right now facing Anne and her husband, and it can be fatal if not caught in time. However, at this point Issac does not have any neurological symptoms at all! Issac does have 40 times more copper in his system than he is supposed to though.

She has asked me to post for her and ask for your patience with her. She will be unable to respond to any complaints about the board so for now, would you use my email to send me anything you might be getting as far as error messages or glitches?

She will not be able to show up daily and lurk and catch up with all of us until she can sort this out. She has got all the websites known to mankind regarding Wilsons Disease and her and Issac are trying to figure out their best recourse. She also asks for all your prayers, positive thoughts and well wishes! And moderators, she won't be active in the mod lounge either. Please keep her and the family in your thoughts and centered in your prayers. This is such a scary time for her on all levels and if she doesn't have to worry about one thing- like this board- then her burdens are made a bit easier.

Thank you-
post #2 of 70
Oh My God!! I am SO sorry to hear this!!!!! I feel so bad for Anne and her husband!!! I hope they can treat this right away so it doesn't get any worse!!!! Please tell Anne that she and her husband are in my thoughts and prayers and will continue to be!!!!!!! Please keep us posted on any word you hear from Anne on how things are going!!!! HUGE prayers going up right now!!!!!!!!!!!!!!
post #3 of 70
Oh thats terrible! Anne, Isaac and Ron are in my thoughts and prayers!

(((HUGS))) to all of them!
post #4 of 70
This is terrible news!!! Major prayers and positive thoughts going to Anne and her family!!!!

Also, here is the link to the official Mayo Clinic website http://www.mayoclinic.org/ Mayo does a lot of important research and I hope their site will be of some help to Anne!
post #5 of 70
Anne, Issac and their family are in my thoughts and prayers, God Bless them all.
post #6 of 70
Thread Starter 
Please read and pray for Anne and hubby now......bump
post #7 of 70
Sending good thoughts for Anne and Isaac and Ron right now.

Christy and Ivo
post #8 of 70
What a horrible time for Anne. We all love her so much, and I'm positive even those who don't reply to this thread are keeping her in their thoughts and prayers.

Anne, Issac and Ron certainly have my energy directed toward them. Sending my love.....
post #9 of 70
To have to deal with such a scary diagnosis on top of dealing with the bombings in Israel and the impending war in Iraq must be absolutely overwhelming for Anne and her family.

I am sending all of my healthy and supportive thoughts to Anne and Issac and am praying that things remain (become) peaceful in Israel.
post #10 of 70
Please convey our family's thoughts and prayers. Will continue to keep them all in our daily prayers. Please keep us posted whenever possible. Hugs to all.

post #11 of 70
Praying for you and your family Anne!!!!!!!!
post #12 of 70
How frightening for Anne and Issac. I'm praying that they are able to nip this disease in the bud and stop it from getting any worse.

Thoughts of strength and support going over to Israel . . .
post #13 of 70
Artemis and I send lots of purrs and loving thoughts for better health!
post #14 of 70
Adding my thoughts and prayers for Isaac's improved health.
post #15 of 70
You and your family are in my thoughts and prayers, Anne.
post #16 of 70
I'm so glad you know what you're dealing with, so that Isaac can get the treatment he needs. I pray that he recovers and that peace is restored to Israel. God bless all of you.
post #17 of 70
post #18 of 70
good thoughts and hopes coming from Iowa for Anne and her family!
post #19 of 70
Thread Starter 
Thanks for all you good wishes and prayers folks. I know she appreciates them all!
post #20 of 70
Anne, you and your family will be in my thoughts during this diffucult time you're going through. I am relatively new to this site but it is a real treasure and I wish all the best for you and your husband.
post #21 of 70
Good thoughts and prayers coming your way from Illinois! I hope that everthing turns out ok for you and Isaac and baby Ron. Hopefully you will be able to find a wonderful doctor that can cure this disease.
post #22 of 70
Hugs, hopes, positive thoughts, and prayers coming your way, all the way from the UK !!!

Peace, Love, and Happiness, Always
post #23 of 70
post #24 of 70
Thread Starter 
Issac went to the doctors and is scheduled to have a biopsy performed on Thursday of next week. Anne says thanks to the Internet, her and Issac now know more about this disease then the doctors in her country! The problem is, the drug that they need to get Issac better is not available in Israel, so they need to reach out to two places and talk to the doctors who are Wilson Experts and get this drug for Issac. The drug is costly $300.00 a month! There is a drug similiar to it in her country, but the side effects are the worse, so it is no longer the treatment of choice, which is why Issac has not been treated with it before. Apparently, he has been manifesting symptoms since he was 14 years old! So the doctor was reluctant to prescribe it until he was 100% sure it was Wilson's Disease. Which, he is now convinced it is, and the biopsy will confirm this diagnosis.

Then Anne will need to use FedEx and get the medicine for her husband and get him started on it quickly. She is also going to contact online prescription sites and find out if they can help her get the drug quickly and cheaper. She is going to write two places and hopefully hook up with doctors there Mt. Sinai and Michigan University appear to be the two leaders in this disease.

That's what I know, and I also know that if she could, she would surf in here and thank all of you for your prayers and good thoughts!

Also,on a side note she is getting ready to FedEx Cat Fancy tomorrow with photos of the cats at the shelter. She has been emailed interviewed for the article and The Phoenix Fund now has $546.00 donated towards the cats of Israel. So thanks to all of you from her!
She sends her best and will try and check in later if she can-
post #25 of 70
Hissy, thanks so much for keeping us posted on this!!!! I hope and pray that they can find a way to get the medicine he needs at a lower cost!!!! I am also glad to hear about Cat Fancy and the money that has been raised! Anne and her family will continue to be in my prayers. Keep us posted.
post #26 of 70
Thread Starter 
post #27 of 70
My thoughts are with Anne and her family.
post #28 of 70
I think many people take it for granted to be healthy, in a non-war torn country, and have medical care and drugs available at anytime.

Of course my most positive thoughts go out to Anne and family. Thank goodness for the internet and the info and resources that are now available to her.

Keep it positive and take it one day at a time!

post #29 of 70

Anne - you and your family remain in our prayers!!!!!!

post #30 of 70
Positive healthy thoughts flooding to Anne and Isaac.
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