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Tonight, I was distracted from the posting party by this tv show, about a young boy who was born with a rare condition called multi-sutural cranio synostosis.

It showed the surgery that he had to have to bring back his face and to make it look slightly more normal, and it was amazing how much of a difference it made. He was such a darling young boy and he has made it into magazines in NZ and even this show about him.

It appears that this condition is very rare, and this family had been waiting for a long time for him to have this surgery.

He is such an amazing little boy with a BIG personality and I am looking foward to reading more about him and hopefully seeing him again on tv.