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LPS is so frustrating!

post #1 of 16
Thread Starter 
Stumpy was diagnosed with Lymphocytic Plasmacytic Stomatitis (LPS) last year. This disease is insidious, frustrating, painful and has no cure. The best hope for cats that contract it is pain management. It's an auto-immune disease where the body thinks that things like their teeth are foreign bodies and attacks the gums to fight off their teeth. Pulling the teeth is an extreme way to treat the disease and Stumpy's teeth were removed last winter.

With no teeth there's nothing left to fight, right? Not in Stumpy's case. His LPS is back in full force and we're at a loss on what to do. The vet suggested laser surgery on his gums and in his throat but everything that I've read on the topic tells me that most cats needs about a dozen rounds of surgery before it take effect and that is only temporary relief. His blood counts are high from fighting off the virus and antibiotics of course aren't helping at all.

We have one more avenue left and I'm going to talk to the vet about it this week. Putting him on strong anti-viral medications like Interferon (e.g. drugs that fight AIDS). The only thing he is on right now is pain medication, steroids and the monthly antibiotic regime. None of this is helping. He's in pain and is starting to eat less.

We put his medications into the wet food that we feed him at night. For the last week, he's been very reluctant to eat as it hurts him to swallow. He takes in a little of it, then we have to pull the bowl and walk away until the pain medication in his food starts to work then we go back and feed him the rest. We can't pill him directly as it hurts too much and he can no longer eat pill pockets (too large for him to manage). We tried a pain patch and he pulls it off so it does no good

For the first time last night, both DH and I had serious thoughts about euthanasia. We were both quiet for a long time and noticed it with each other. When I asked him what was on his mind, he brought up what I had been thinking about. DH is usually my rock when it comes to these decisions, but Stumpy is mostly his cat, and he is more emotional than I am. So we're staring at the elephant in our living room and we're not happy that its here.

In all my years I've faced all sorts of weird diseases and injuries with my critters. This one beats all on the frustration factor. So bear with me if my posts come across being terse - I'm feeling dark and depressed right now. We're on the down side of the evil disease and just hoping that he can rebound through anti-viral medication.

Thanks for listening.
post #2 of 16
I'm so sorry!

It sounds like you have gone to a lot of effort to help him. Stumpy is very fortunate to have you to do what is best for him including making the hardest decision if it becomes necessary.

My thoughts will be with you.
post #3 of 16
I am sending and ...

Lymphocytic Plasmacytic Stomatitis (LPS).. i am not familiar with this but if pulling the teeth didnt help could it be in the esphogus into the stomach>>??
post #4 of 16
I know that Cytoxin (another chemo drug) is given to human patients with some autoimmune diseases like Lupus. We've had patients do very well on one treatment every 6 weeks.

You could always give the Interferon a try. If it works - great. If it doesn't work or the quality of life just isn't there, you could revisit your options.

Good luck and positive thoughts.
post #5 of 16
What a painful situation to face. Sending hugs and vibes that you're able to find something.
post #6 of 16
Thread Starter 
Quote:
Originally Posted by sharky View Post
I am sending and ...

Lymphocytic Plasmacytic Stomatitis (LPS).. i am not familiar with this but if pulling the teeth didnt help could it be in the esphogus into the stomach>>??
It's pretty specific to the gums and sometimes the infection goes into the throat. The only way to diagnose it is through a biopsy, which we had done last year. So yes, it could be in the esophogus by now but that is not where it originated.

Pulling teeth is a procedure you take when other methods stop working and it usually puts the disease in remission for a long time. Cats can live with it for many years with no issues. In the case of Stumpy, even my vet is surprised at how fast the disease is progressing with him. But he is pushing 13 and has lived as alpha in a large household for over 10 years. The stress of his life is probably contributing to this right now.

And he balked at the pain pill I put in a treat for him this morning so had to resort to simply pilling him this AM. He's hidden from me since. *sigh*
post #7 of 16
Thread Starter 
Quote:
Originally Posted by Mom of 4 View Post
I know that Cytoxin (another chemo drug) is given to human patients with some autoimmune diseases like Lupus. We've had patients do very well on one treatment every 6 weeks.

You could always give the Interferon a try. If it works - great. If it doesn't work or the quality of life just isn't there, you could revisit your options.

Good luck and positive thoughts.
Vets will prescribe anti-viral and/or chemo drugs to cats with the disease. I'll talk to my vet about either of those options.
post #8 of 16
Were x-rays done to ensure that no bits of teeth were left behind?
post #9 of 16
Thread Starter 
Quote:
Originally Posted by cloud_shade View Post
Were x-rays done to ensure that no bits of teeth were left behind?
That's also in the plans for this week. The vet that did the surgery and is highly practiced in dentistry, but that doesn't mean that she didn't leave some shards behind. I understand that the roots of cat's teeth are very slender and break off easily. I've just got the name of a specialist in geriatric dentristy and am calling him tomorrow morning.
post #10 of 16
I'm so sorry to hear about Stumpy. You've done so much for him already. I hope a solution can be found that will allow him to live comfortably. Hugs and positive thoughts to all of you.
post #11 of 16
Thread Starter 
We had the serious discussion with the vet this morning. Stumpy was in so much pain that he stopped eating, and has hidden himself away from everyone. As the most sociable cat in the house, he would see us and slink away in fear. Pain has that effect on cats and of late, most of our interactions with him was to pill him which would hurt him.

So we told the vet that unless we could do something about the underlying problem causing him pain, that we weren't going to keep him around if all he feels is pain. It is simply not fair to him.

So Thursday morning, we will bring him in for a full set of xrays. She'll remove any tooth fragments that might have been left from his original extraction, then remove the rest of his teeth. This is a last ditch effort and results will be hit or miss. When we had the first round of extractions, he was in great shape for about 6 months afterwards. The best that we can hope for is that this puts the disease in remission for a long time. The worst is that this doesn't help but he won't be any worse than he is now.

We've put another pain patch on him. This time on his arm and bandaged on so that he can't remove it. We also had a depo shot to help with the inflamation. This will hold him over until his surgery on Thursday and we don't have to stress him out by trying to pill him.

We're home right now and for the first time in 48 hours, he's walking around the house and rubbing against the dogs. So he's out of pain for the time being and OMG lets hope that the surgery on Thursday takes away his pain for a long time.

I hope no one has to go thru this disease with their babies. It's far more frustrating than CRF.
post #12 of 16
I'm so sorry you and Stumpy are going through this. I hope the surgery on thursday will help him. I know you have some hard decisions to make if it does not.

Many to you both.
post #13 of 16


on a lighter note STUMPY you didnt tell meowmy you were going to be a crisis .. get well soon STUMPY
post #14 of 16
Thread Starter 
Quote:
Originally Posted by sharky View Post


on a lighter note STUMPY you didnt tell meowmy you were going to be a crisis .. get well soon STUMPY
It's been very hard to remain calm through all of this. DH is usually my rock but DH is as attached to Stumpy as I am. You won't see me fall apart too often, but I'm right on the edge this time.

When you live with as many critters as I do, there are always ups and downs. Then there are the times when you are really close to them and their pain becomes your pain. I'll send out a general apology to everyone if I've been / am terse.

Thanks all for the positive vibes. It brings a lot of comfort to know that people care.
post #15 of 16
and lots of
post #16 of 16
I am so sorry...I don't know what to say except I understand the enormous depth of emotion that comes up when a cat you love is in pain and you just want to be able to fix it.
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