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Vibes/prayers for my 5 yr old daughter please.

post #1 of 42
Thread Starter 
Hi everyone,

My little daugther has been battling an autoimmune blood disorder since March. She was very sick, airlifted to another city, transfused and given high dose steroids. She has been in hospital once again since and has relapsed 4 times in total with right now being the latest. I got the call to take her to the lab again today where they took EIGHT vials of blood for additional testing/cross matching. She's had around 70 blood tests in the last 4 months. Poor little thing can't afford to lose anymore hemoglobin than she is already lacking!

Anyway, we may need to be transferred back to the big city Children's hospital next week for some different kind of even stronger drug/immunosupressors. Me being away puts a stress on the household too since DH needs to get to work and our other two are only 6 and 9. I know family will help us out but still it's - well - you know. I have been fighting the urge to get really down but sometimes it all just comes rushing in . I never imagined having to deal with my child being so sick/having a life threatening illness.

Thanks for listening.

Her name is Emma - here she is:

post #2 of 42
You and your family are in my thoughts & prayers. Get better soon, sweetie. I like her cute little slippers.
post #3 of 42
Sending tons of vibes for you baby girl!

She's absolutely precious!
post #4 of 42
Aw - vibes for the cutie! Poor thing - does she need a bone marrow transplant?
post #5 of 42
She will be in my prayers!
post #6 of 42
Oh Emma darlin, such a pretty little girl you are! I hope you can feel this long-distance golden light filling you up with strength and healing energy... and I'll be thinking of you and sending this healing light every day until I hear you're all better. Please be well, sweetheart.
post #7 of 42
Oh that is so not fair.

Emma and your family and you are in my thoughts. I am sending lots of get well soon vibes

She is such a brave girl.
post #8 of 42
Oh I'm sorry you are going through this. I understand how difficult it must be for you. I hope she gets better soon.
post #9 of 42
Sending prayers and good thoughts for Emma!
post #10 of 42
Sending lots of vibes to your family and especially Emma.
post #11 of 42
Emma will be in my thoughts. I'm sending lots of "be healthy" vibes her way.
post #12 of 42
She is so cute. I will pray for her and your family.
post #13 of 42
I'm sorry your sweet girl has been going through such an ordeal. Sending lots of good vibes to you all.
post #14 of 42
I'm so sorry for Emma and your entire family. Lots of get well vibes from here also.
post #15 of 42
oh bless her little heart I am so sorry to hear what Emma & your family are going through right now. I am pleased that you started this thread, TCS vibes can do such magic... I will hold Emma, you & your family close to my heart right now

please keep us updated
post #16 of 42
The poor little thing Sending out lots of positive energy that she gets healthy soon!!!!!
post #17 of 42
Emma is a beautiful little girl. Sending many prayers for her and your family.
post #18 of 42
Oh, poor Emma (I've always thought that was a beautiful name!). It's not fair such a little girl should have to go through this. I can only imagine what it is like for you and your family. Many thoughts, prayer and healing vibes going out to her and the rest of you.
post #19 of 42
Oh my dear goodness.....you and your daughter are in my prayers
post #20 of 42
What a sweet looking little girl, looks like she's being very brave!!!

Stay strong, we're all sending our biggest vibes to her
post #21 of 42
Sending many vibes to you all.
post #22 of 42
Words feel quite empty at a time like this.
Little Emma is just adorable.
You have my prayers that she is healed quickly & easily.
Calming vibes are on the way to your precious daughter, you and your family.
post #23 of 42
Wow, how scary..I am sorry she and your family are going through this

I am sending many for her
post #24 of 42
Emma is such a beautiful brave little girl. Many many healthy vibes heading your way!
post #25 of 42
((((((((((((((((((((((((((((((((((((((((( ))))))))))))))))))))))))))))))))))))))))))))))))))))
Thinking of this brave little girl!...
Get well soon!
post #26 of 42
Thread Starter 
Thanks so much everybody. Here I am crying again but in a good way

There is no talk of bone marrow transplant right now. I guess we will have to see how things progress - you never know what is going to happen.

Yes, she is very brave - she is a trooper. We had her in at the hospital this morning for a check-up and it looks like the Children's hospital will leave her at home for this next course of meds, as long as she starts to bounce back soon. It buys us a month anyway. Then, they want to see us in August to discuss the new drugs so we're prepared if she relapses again.

So, for now we are at home and she's on the couch watching Road to Avonlea.
post #27 of 42
Oh dear - poor thing! Sending many healthy vibes!
post #28 of 42
Lots of healthy vibes for Emma and for you.
post #29 of 42
Oh what a cutie! you will all be in my prayers!!
post #30 of 42
Emma is a little sweetie. What an ordeal for a little person -- and of course for her family. Sending lots of vibes and prayers for a solution to her troubles, and a quick return to health.
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