Is anyone else dealing with a feeding tube? My little girl has been diagnosed with Hepatic Lipidosis, and we took her home from the AMC this past Friday... this is so hard. I'm trying so hard to stay strong for her but I'm having such a hard time keeping it together. I just want to hear from someone who has been through this that it will get better. She is totally uninterested in eating, so we are feeding through the tube... sometimes it stays down, sometimes it does not. Any words of encouragement???
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3/18/07 at 7:17am