I have severe IBS (D), severe GERD to the point that i now have hiatial hernias, gastroparesis, i'm insulin resistant, lactose intolerant, and i have polycystic ovarian syndrome. ALL of bother my IBS.
MY life is a living nightmare as far as IBS is concerned. There's not a day that goes by that i don't have symptoms. When they get REALLY bad- i have to call in to work sick and pretty much spend the entire day in the ladies room sick as a dog.At this point there is nothing that they can give me for it since i have to take a double dose of zegarid every day to help the GERD (if i don't have it i can't stop vomiting no matter what i eat). Since I have gastroparesis (delayed emptying of the stomach) they can't give me anything for the IBS with diarreah because it will make that worse. Mine is like a "dumping syndrome" it takes a while for my food to digest and then once it was i get sick as a dog. I'm also really insulin resistant so a lot of foods bother me. I can't have dairy, splenda, lots of wheats and whole wheats, and they also think i have other food allergies (i'm getting tested in march- they think i'm allergic to yeast (which is in a lot of foods). ) I have tried just about every digestive diet out there- Celiac (when they thought i had celiac disease (gluetin allergy) - i don't i just have a sensitivity to it), low fat, low residue, low acid, and the IBS (d) ones. What i could have for one diet i couldn't for another so i finally just said forget it and didn't make any more appointments with my dietician- i saw her once- and she made my symptoms worse!
So what i did is started keeping a food journal- i record what i eat and any symptoms i get from it. If it bothers me- i eliminate it from my diet. If it doesn't i eat it (there isn't much that i can eat that doesn't upset me so i've just had to try and deal with it as best as i can.) At this point they can't do GERD surgery because it will make the gastroparesis worse....which would make the IBS worse- there is nothing medically they can do for me at this point
It's really frusterating and painful to live with. People that don't have IBS just don't seem to understand how painful it can be and how hard it is to live with. I know the location of every bathroom within a large radius of my work/home- because i can't help it i have to stop all the time when my symptoms make up. Imodium doesn't do a thing for me....none of the medicine's i've tried have. So at this point i only take medicine for my GERD symptoms (and the double dose of Zegrid helps soooooo much!!! I don't have many symptoms at all with it- but if i miss a dose i get sick as a dog because my GERD is bad.) Since there is nothing they can really do for me...I just try to maintain a healthy lifestyle. I eat right (and avoid things that trigger my symptoms.), I keep a food journal, I work out regurally, and the biggie for me is- I cook just about everything i eat at home. That way i know exactly what's going in my food and i don't cook anything in there that triggers my symptoms. It's also a lot healthier than eating out all the time and my food always turns out yummy
/ Also- keep a food journal- i can't stress that enough- some stuff that has dairy in it for instance doesn't bother me as much in moderation- i can cook with some cheeses- but others i can't...i just had to pick and choose what i can have. / Also when you have a food journal- it's good to take it in to your doctor appointments so they're on the same page as you are. / You can try adding a little fiber to your food too. Get a bottle of Fibresure (in the green bottle) and sprinkle it into your food when you cook. It's tasteless, flavorless, and odorless. If you have IBS with constipation it will help you by loosening your stools a bit and if you have IBS with diarreah it will harden them a bit so you don't have them as often. It's like a middle ground. So that might help you a little. Good luck sweetie.